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LisaP

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No growth
« on: November 07, 2011, 04:46:30 am »
Hi,

Finally able to post, my computer is down, don't know if the storm had anything to do with it.  Anyways on October 19th I have found out that my AN has not grown and Dr. Mason was pleased with the fact that my hearing remains 100 percent.  So continue to W&W and next MRI will be in two years.

LisaP

PS.

Living in Western Massachusetts
Events in 2011 related to weather
Jan two blizzard
June Tornado
June mid microburst
August Hurricane and Earthquake
October blizzard
Priceless
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

ppearl214

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Re: No growth
« Reply #1 on: November 07, 2011, 04:48:30 am »
YAY on no growth!!!!!!!!!!

Crap regarding Mother Nature's wrath that you pushed eastward.  All of us in E. MA cheering on everyone in W. MA! Hang tough m'dear and hope you weren't without power for too long!

xo
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

LisaP

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Re: No growth
« Reply #2 on: November 07, 2011, 04:52:45 am »
Hi,

3 days no electricity, 5 days no cable, when I saw the Chartier Truck in front of my house last week I wanted to kiss him.  I am hoping for no more suprises from Mother Nature.  At least I do not have to worry about my AN for hopefully two more years.

Are you coming on the 19th?

LisaP
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Derek

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Re: No growth
« Reply #3 on: November 07, 2011, 04:58:14 am »
Hi Lisa...

Congrats on being 'stable'...any particular reason why you are opting for biennial rather than annual MRIs?

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

Lynn Mc

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Re: No growth
« Reply #4 on: November 07, 2011, 10:41:35 am »
Way to go Lisa.....  Congrats on the W & W!!!  Mother Nature has been a beast to us this year!!!
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

Jackie

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Re: No growth
« Reply #5 on: November 07, 2011, 12:14:48 pm »
Hello LisaP

Congratulations on the "No Growth" report, time for the "Happy Dance"!! Curious also as to why the two year wait for the next MRI
as opposed to yearly???
Fellow W and W in Oregon,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Jim Scott

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Re: No growth
« Reply #6 on: November 07, 2011, 04:37:04 pm »
Lisa ~

I'll keep this uncharacteristically brief: Congratulations!    ;D

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: No growth
« Reply #7 on: November 08, 2011, 05:14:01 am »
Quote from: LisaP on November 07, 2011, 04:52:45 am
Are you coming on the 19th?
I'm still questionable due to issues.  Will advise. Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mickey

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Re: No growth
« Reply #8 on: November 08, 2011, 11:50:10 am »
Congrats Lisa! Keep up the good work....As far as the latest on W+W studies published in our newsletter, 5 years of no growth and a good chance of stability going into the future. Best wishes, Mickey
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Keeping Up

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Re: No growth
« Reply #9 on: November 09, 2011, 11:43:01 pm »
Yippee!  I go for my next MRI next month(almost 2 years).  Equally hoping for no growth.  Not sure when my next MRI will be but will also likely be 2 years away.
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

LisaP

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Re: No growth
« Reply #10 on: November 10, 2011, 05:53:22 pm »
Hi

Thanks for all of the best wishes and congrats.  I was so glad to be able to stay in western mass and have my MRI done here.  Dr., Mason believes that due to the no growth for the past 3.5 years that I should be able now to go to 2 years.  If I notice any changes and for me that will probably be my hearing to call him for another MRI.  So I just need to keep myself healthy and montior my symptoms.  I have 100% hearing still, he said I was lucky, most of my symptoms are headaches and facial stuff.  So I continue to march on forward with my AN for another two years.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Rivergirl

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Re: No growth
« Reply #11 on: November 10, 2011, 07:21:39 pm »
So happy for you Lisa..........you must be relieved that you don't have make any decisions right now. :)
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

LisaP

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Re: No growth
« Reply #12 on: November 13, 2011, 03:07:57 pm »
Hi Cindy,

Yes, I can't believe that it has been 3.5 years now.  I am so busy with work and taking care of my mom, that I don't know how I would even fit my AN in.  I still have symptoms but now can put it on the back burner for hopefully two more years.  How are you?

LisaP
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W
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