Tumbleweed's 40-month followup MRI

[Anomar11]

I'm delighted for you TW.  I believe your nutrition protocol helped.  I also take anti inflammatories.  My AN plumped up at 1 year and stayed there for year 2.  Will have year 3 MRI after the Holidays.  I'm a little anxious for this MRI, but keep reminding myself of overall stats.  Take care.  Mona

[Tumbleweed]

Thanks, Mona!

It might comfort you to know that my AN shrank (from month 5 to about month 16), then it didn't shrink much if at all (months 17 through 28), then  it shrank again (month 29 through to month 40/present day). (This is an approximate timeline). So your AN staying at a consistent size for year #2 doesn't necessarily portend it staying that size, even this long after treatment.

We'll all be hoping the best for you with MRI #3!

Take care,
TW

[jerseygirl]

Hi TW,

I just read your wonderful (no, phenomenal) news as I haven't been reading forum posts for the last couple of weeks. My sincere congratulations! Let's hope that your MRI always stays this way.

When I researched my treatment options, I consulted GK specialist who mentioned that AN never goes away because it is not vascular. At best, it shrinks. Cancer is very vascular and can disappear after treatment. Could it be that your AN is more vascular than average and that is why it shrunk more than average? Did any doctor ever comment?

Regardless of why it shrunk- vascularity, natural regimens or perhaps both - it is GREAT!

             Eve

[Tumbleweed]

Thanks, Eve!

Dunno if my AN was more or less vascular than the average tumor at the time of treatment.

A few years ago, I read about a couple of different cases where an AN spontaneously disappeared (completely) a few years after treatment. These cases were reported and backed up by MRI series in separate scientific journals. The authors of the studies could not determine what caused the spontaneous disappearance in each case. But I'm hoping I'll be Case #3! 

Best,
TW

[Tumbleweed]

Tumbleweed, I think it would be a great idea to start a thread discussing the lifestyle approaches that post-radiation patients have followed (similar to the thread going on the W&W category), and their outcomes. For sure it would be of great help to all those who are considering radiation, or had treatment recently.

Marianna

Oops, forgot to mention I did this. You can view it here:
http://www.anausa.org/smf/index.php?topic=16230.15;topicseen

So far, only one other person (Phyl) has noted there that their tumor shrank (50%).

Thanks, Marianna.

Best wishes,
TW

[Chelle]

TW,
Congrats on your great news!!  As a newbie  (diagnosed a week ago) I've already spent a lot of time here, so it's great to hear about good outcomes.  As one who tries to live and heal as naturally as possible (albeit not ignoring the potential benefits of conventional medicine!) I also appreciate what you've shared about your regimen.  At the worst, it just make you feel better and God knows we all could use that!

On Thanksgiving , I'm grateful for finding you all!

Michelle

[jerseygirl]

TW, I am keeping my fingers crossed that you will become case #3! Sure beats surgery!

    Eve

[MinhVietNam]

Tumbleweed, I think it would be a great idea to start a thread discussing the lifestyle approaches that post-radiation patients have followed (similar to the thread going on the W&W category), and their outcomes. For sure it would be of great help to all those who are considering radiation, or had treatment recently.

Marianna

Oops, forgot to mention I did this. You can view it here:
http://www.anausa.org/smf/index.php?topic=16230.15;topicseen

So far, only one other person (Phyl) has noted there that their tumor shrank (50%).

Thanks, Marianna.

Best wishes,
TW

Hi Tumbleweed. I don't know if I am one of those case. My tumor seemed completely disappeared only 1 years after CK according to my MRI 1 year post CK (my AN's size is 750 mm3). After one year I was almost return in normal life, but now after 2 years post, the symptoms return as wonky head, imbalance, tinnitus and special sometime I loss almost my hearing (fluctuating hearing loss) . I made MRI test last month and it showed no sign of tumor again but the doctor told me that my nerve is already frayed and tender. I may become deafness (because I only can hear in AN side  ). I am so sad now.

[Tumbleweed]

Hi, Minh:

So sorry your symptoms are causing you hearing loss. It's terrific and amazing, however, that your AN disappeared. Thanks for letting us know about that; it's very encouraging. I am hoping mine will continue to shrink.

Best wishes,
TW

[Rivergirl]

Tumbleweeds.....just checking in and saying congrats on the shrinkage!! Keep up the good work with the dietary stuff sounds very healthy indeed.