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Author Topic: newly diagnosed with 2 AN  (Read 8928 times)

Ellen K

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Re: newly diagnosed with 2 AN
« Reply #15 on: December 06, 2011, 08:30:21 pm »
Hi Loubee,  I am also w&w for a very small tumor. I had terrible trouble with dizziness and vertigo. You can find exercises on YouTube for positional vertigo, but I don't think they help for a tumor. The only thing that helped me was just a few sessions with a physical therapist who was trained to deal with ANs, and being patient for the other nerve has to compensate. I also have facial twitching (but only in my chin, weirdly enough) so I commiserate in that front too. Hang in there, stay active and try not to freak out too much - easier said than done I realize.
Peace to you,
Ellen
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3mm diagnosed December 2010 when I was 45. Very unusual presentation - severe vertigo, then dizziness daily, now just occasional dizziness, but it can be debilitating some days. No hearing loss! But yes to ear fullness and wonky brain. Watch and wait.

Lou

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Re: newly diagnosed with 2 AN
« Reply #16 on: December 07, 2011, 04:06:12 pm »
strangely enough, i am freaking out less and less. i have to say it is all because of this site, thank you all and god bless you all. talking to people who know really does make a difference. the tips and suggestions are a life savour
M x
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''The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be''

Bilateral facial nerve neuromas
8mm left side and 7mm right side. diagnosed late 2011.Watch and Wait Staus -  Currently at
the mercy of the English NHS system

Benji

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Re: newly diagnosed with 2 AN
« Reply #17 on: December 11, 2011, 05:32:41 pm »
Diagnosed 12/1/11 with 4mm AN. mild hearing loss in the left ear but my head feels like I'm carrying around a 5 lb weight.  It's getting better but I wish there was something I could take for the head pain and I'm told there is not.  True? any words of advice on how to manage?  It seems to be really bad on the rainy days, debiliating.  thank you. Geri
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Lou

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Re: newly diagnosed with 2 AN
« Reply #18 on: December 12, 2011, 03:21:29 pm »
bless you, I have two one is 6mm and shaped like a saucer and the one on the other side is 8mm and round. I am told they are facial nerve neuroma's but the symptoms seem to be the same as acoustic neuroma's. I am seeing my ''specialist'' on Thursday and will ask some more questions, hopefully I can enlighten us both. Do you get really tired eyes and just get tired as well.....
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''The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be''

Bilateral facial nerve neuromas
8mm left side and 7mm right side. diagnosed late 2011.Watch and Wait Staus -  Currently at
the mercy of the English NHS system

annamaria

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  • Posts: 89
Re: newly diagnosed with 2 AN
« Reply #19 on: December 12, 2011, 05:29:41 pm »
Don't worry... the national health service ( free?!?) is COMING HERE TOO!! November 2012.

Annamaria
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