Stephanie and Mindy,
I have been where you both are. I was anxiety ridden,horrified and cried sometimes for hours at a time, alone in my bedroom when everyone else had gone to sleep. I had an 8 week old and a 2 1/2 year old at the time of diagnosis. For 3 months I did my own research for my surgery and took care of 2 babies at the same time. My eyes are tearing now as I write this. I want you both to know that you are going to be ok. It takes time. Be very patient with your bodies,brain,mind etc...walk,nap,walk,nap...don't do anything that will compromise the healing process,such as lifting or pushing yourself too hard with house chores etc...I really stuck to the post-op plan and had no problems. I couldn't hold my baby (who was 5 months old at the time of surgery)..it was a very difficult time for me emotionally also. But no matter what I wanted to do...I stuck to the plan. My husband would hold her and I would hug them both. My 2 1/2 year old would lay next to me in my bed while I read to him. After surgery I had some dizziness (nothing major), 1/2 of my face was paralyzed (this started about 2 1/2 weeks after surgery) and lasted about 10 days. I never had any headaches,no csf leak etc...the fatigue was pretty overwhelming for several months. Dr. Brackmann/Schwartz did everything they said they would do and my recovery went just as they said it would. I am fine. My life is great...I do have ssd...but I really don't care....I can live with it:)You will both be fine and all of this tumor, life altering crap will be gone:) Your lives will go on....Best wishes being sent from me to both of you!
