Hang in there! For the most part, we have all experienced the feeling I imagine! As the AN is somewhat rare, although not so much so any longer seems,, the majority of your friends/family will not have ANY idea what you are dealing with, both physically and more so emotionally... I started announcing it as a brain tumor relating to my hearing nerve in the brain...... seemed to more accurately explain it for the "unknowing".....
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... it is a VERY big deal to us,, but as with most illnesses,, people don't really want to hear ALL about it if it does not affect them... plus, if it is not in their head,, it doesn't affect them the same way...
Even some in my family did not know the "seriousness" of it until they spent 11 hrs in waiting room with my husband! Then all of a sudden it was,, WOW ,, did not know this was so serious... DUH!!!! Told ya...
Even after surgery,, you can't explain much of what you have been through, ,before you see people "tuning you out" with all the details.. that is just human nature for most..
good luck,, don't fret too much over how "they" react to the news,, WE know what you are dealing with and it IS major!! WE are here for you anytime.....
Just saw your last post before posting this,, maybe they should go to your appt.. tomorrow.. probably would be an eye opener for them.. I know a girlfriend went with me to appt with a new Dr and she was really enlightened as to what it was and what was going to be done about it.. she had not realized the significance of it before that even though I TOLD her...
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