Author Topic: 15 Weeks Post Op  (Read 2801 times)

mnsmr

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15 Weeks Post Op
« on: February 15, 2012, 11:27:13 am »
Hi...I am sharing my non-eventful AN experience in hopes it may bring some comfort to those struggling.

I had experienced hearing loss for a long time. Someone suggested I see a specialist, so I made my appointment with a clinic here in MN. The ENT doc was concerned so he had me schedule an MRI. The MRI confirmed a 2.6 or 2.7 cm right side AN. I made another appointment with their specialist. He told me that I was probably not a candidate for w&w or radiation, as it was pressing on the brainstem. He told me to get one more opinion before he would proceed.

I decided to go to Mayo for a second opinion. It was close and in my network. I met with Dr. Link and Dr. Driscoll. They confirmed everything I had been told.
Then....the real shock...they had a cancellation and told me they could perform translab the next day. Although I was unprepared to move so quickly, it was a real blessing since I was having a great deal of anxiety.

I had my pre-op physical, and discussed all my fears with the pro's at mayo. They are all amazing. My wife and I drove back home and picked up some stuff.

We returned to St Mary's early in the morning. I was prepped for surgery but my memories of even that are vague. I remember thinking they were finally wheeling me into the O.R., when I heard my wife tell me they "got the whole tumor and preserved the facial nerve." I was nautious for a few minutes, but then I was fine.
I did not experience any dizziness or balance issues. I am told its because the AN had already forced me to adust. The surgery lasted 11 hours.

We asked for a private room at St. Mary's. She ordered a cot and stayed with me the whole time. I was in the hospital for 4 days. (That weekend, the MN Vikings and Gophers won their games. I wondered if they reversed my football nerve.)

I was back to work in 5 weeks.

After my 3 month MRI and ok from the docs, I was back to my bowling league...my scores still stink.

The only symptom I have left is SSD. I actually had already adapted to that also. This was a huge relief since I play in a community symphony orchestra and have played violin all my life. I returned to rehearsals at the beginning of January. I think the SSD may have actually made me a better musician. I have to be very aware of dynamic balance for the sounds to blend.

The whole experience started at the end of September 2011. Surgery was October 27, 2011.  By far, for me anyway, the worst part of the whole experience was the anxiety between diagnosis and surgery.

I have never had any medical issues before. I am very thankful this turned out so well. I don't know how I can ever show enough gratitude to Dr. Driscoll and Dr. Link.

Seamar

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Re: 15 Weeks Post Op
« Reply #1 on: February 16, 2012, 01:24:43 pm »
How wonderful that you were able to bypass weeks or even months of pre-op anxiety.  God does work in mysterious ways.  I had Gamma Knife on the same day as your surgery and am having more post-treatment issues than you.  Best wishes for a continuing happy and success-filled life!
7mmx1.2cmx5mm left AN
GK 10/27/11 with  Drs Golfinos, Rush and Han @ NYU Langone Medical Center

Relax...God is in control.

mindyandy

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Re: 15 Weeks Post Op
« Reply #2 on: February 16, 2012, 01:45:39 pm »
That is great that you did not have to experience a whole lot of waiting time. Yes the anxiety is horrible. I know this first hand. Very glad to hear your great outcome. Welcome.

Mindy
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

leapyrtwins

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Re: 15 Weeks Post Op
« Reply #3 on: February 16, 2012, 03:08:35 pm »
Great story; thanks for sharing it  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: 15 Weeks Post Op
« Reply #4 on: February 16, 2012, 03:11:39 pm »
Hi, mnsmr - and welcome ~

I appreciate your registering here and taking the time to post your AN experience.  Your story is similar to mine - once diagnosed, a relatively fast surgery date and an excellent outcome with a rapid recovery.  Your experience is not an anomaly and it certainly is encouraging so thanks again for sharing it with our members. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: 15 Weeks Post Op
« Reply #5 on: February 16, 2012, 03:15:19 pm »
Forgot to mention, that like Jim, I had a good outcome.

Some normal issues post op but nothing permanent except for SSD. 

Life is good,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Suu

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Re: 15 Weeks Post Op
« Reply #6 on: February 17, 2012, 02:28:01 am »
All I can add is WOW! I am impressed with how your body handled it all.  Well done mate.  ;D

Suu xxoo
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12