Gennysmom.... oy... here we go again.

[ppearl214]

Good news.. she got to sleep in her own bed last night and feed her birds... bad news, the leak resurfaced. She is now waiting on phone call from dr's to have her readmitted to do the 30 min procedure to plug the leak.  (I reoffered my belly fat.. she said this time.. she may take me up on it).  Frustration, aggrevation and any other word ending in "-ation" really does sum it up.  Will keep you all updated as I learn more... she is waiting for the 3 dr's involved to speak to get her back in. Since Thurs is usually not Op day, I *coff* highly suggested to her that all 3 of the dr's coordinate their lunch hour today and get their hinnies into the OR and get her fixed.. pronto! So she can be home (perm!) this weekend.

She asked for all funky dances, dog toots, smelly socks and any and all healing thoughts be sent her way. Updates also on her carepages.

Will advise as soon as I learn more.

Phyl

[ppearl214]

1pm EST/10am PST, Kathleen is en route back to hospital... she should be arriving in approx 1 hr.  Surgeons are coordinating schedules now to try to get her back into the OR today.  Will advise further info as I receive.

BTW... she confirmed she IS wearing her Pirate socks  

Thoughts and prayers all!
xoxo
Phyl

[tatianne]

im new here and im not aware of the situation of the person you are speaking of however,
i will send my positive thoughts and prayers her way.
God bless her and the doctors who will be there to fix her all up.
T

[matti]

Thank you for the update and also for leaving me a message, sorry I missed you and Beanie. When I saw carepages early this morning my heart sank.

I'm wearing my pirate socks in support of our girl!

hugs,
Cheryl

[marystro]

Going through Alex's drawer now for some prirate socks to wear also.  Our prayers are with her and the doctors who will take good care of her and send her home soon!

Mary

[ppearl214]

update:

On the phone with her now.. she's home! YAY!!! The pirate socks (solid pink with white skulls) paid off!  It was a false alarm, not due to CSF leak but another condition to do with the autonomic (sp?) nervous system (no brain signal to be needed, functions that occur automatically). So, anyway, her nose is running and such.. she's on antihistimines to help control the situation and is being monitored VERY closely by the dr's and staff at the dr's office.  She cannot thank you enough for ALL of the support, love, huggles and all the pirate apparrel you all have donned in her health support.

Look for updates later on her carepages... she is going to type it herself!

xoxoxo
Phyl

[matti]

Thank you sweetie Phyl :-*      

Wow what a relief!!!! (and home in time to watch Big Brother)  YEAH Kathleen!!

hugs,
Cheryl

[ppearl214]

she's done an update on her carepages.


and Raydean... I am soooooooo sorry I missed your calls last night.  Had to take Imitrex for my headaches, combined with my low does Valium for my balance and I was out like a light.  Phone next to me and missed your calls AND Gennysmom/Kathleen's call!!!!!!!!!! 

[Crazycat]

Hey Phyl,

         How about "malpractice - ation" for another -ation word?
 Think of the radical surgeries many of us here have had and none of us have experienced a recurring problem like that. Kathleen should not have to be enduring a problem like that unless she was putting undue pressure on her body like I do by weight lifting and jogging - but only after healing up for a couple of months.
  Come to think of it, after the first phase of my treatment - the shunt installation. I did go jogging a few days after my return home without any problem. It was the tumor resection a month later that really "cleaned my clock". That was a long recovery. The doctors warned me for that one: absolutely no strenuous physical activity for at least two months! I really couldn't have anyway, I was too weakened and needed the time to heal and stabilize.
  But I know that, in this regard, Kathleen had not been "overdoing it". She's too smart, too aware to have done something like that.
Kat is in a dangerous predicament. The exposure of c.s.f. can lead to the contraction of meningitis, which can be lethal.

                      Paul

[nannettesea]

Thanks for the update, Pearly.  Glad it was a false alarm.  But she must monitor it closely, as we know she will--like Paul said, it's serious.

love,
Nan

[Crazycat]

Oops, sorry about that. I only read the first statement. False alarm!? Thank God!!
     I'm just an angry person.

 Paul

[Jim Scott]

I was pleased to read that the supposed CSF leak was a false alarm and the actual problem was not especially serious.

Having read about these CSF 'leaks' - here and elsewhere - I asked my neurosurgeon (pre-op, of course) if this might be a post-op problem for me.  He replied that he hadn't had an AN patient of his experience a CSF leak "in years".   I kept his record intact and did not have any CSF 'leaks', post-op,  thank God.   

I do not 'know' Kathleen but she is obviously a popular gal around here.   I'm happy for her avoidance of a CSF 'leak' -  and I certainly wish her well in her recovery. 


Jim

[Obita]

Gennysmom:

Take it real easy this first month.  Hope you are feeling better every day.

Just wanted you to know I am thinking about you and hoping your recovery
is going much better than it started out.

Kathy from Minnesota

[Gennysmom]

Thank you all for your thoughts, prayers, and e-mails to the hospital.....it really pulled me through.  My advice from this last trip.....do not stay alone in the hospital, you need an advocate 24/7.   Do not assume the nurses know what they are doing, and do not let them  bully you.  Mom and I were a bit infamous in telling a couple nurses to leave and never come back.  You need to be monitored every 1/2 hour if you are on a lumbar drip, and there were times my mom just did it to keep me safe.  I'm now an expert on lumbar drips, so let me know if you have any questions.  I apparently am an anomaly, my Dr.'s CSF leak incidence is 3%, which from what I've seen is lower than the national average.  

So, all is good for now, I can tell I'm getting some slight facial movement back and will soon be ready to get back on the PBW!!!!  I've still got the pink socks with the skull and crossbones on, and will wear them for at least the prerequisite 3 days.  Hopefully in another week or two I'm going to go have an outing with Nan.....something to look forward to!!!!!!  Finally!!!!!!!  

Anyway, thanks again so much for the e-mails everyone!!!!!!   Love you guys, you are great!!!!!!!!

Kathleen

[ppearl214]

I thought I was smelling stinky socks from the "bad" coast!

xoxooxoxox

*runs like heck!*
(left you vmail, btw!)