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Author Topic: Good news for Laz  (Read 7115 times)

Larry

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Good news for Laz
« on: February 26, 2012, 08:16:52 pm »
Two and a half years post radiation treatment on my AN that had re-grown following surgery, my AN has not grown any more.

This is what the radiation treatment is designed to do so at this point, I'm quite pleased. Would have been better if the growth had shrunk a bit but hey. beggars can't be choosers.

The plan is for a MRI in 12 months and then every two years.

Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Jackie

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Re: Good news for Laz
« Reply #1 on: February 27, 2012, 02:05:02 am »
Yea Laz,

So glad that there is now new growth and that prayerfully they have arrested that intruder, may he die a timely death! Oh, I am out of character, right now, huh?  Guess I can blame my nerves since I face the tomb of gloom next sunday!
All the best of blessings to you Laz,

Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

ppearl214

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Re: Good news for Laz
« Reply #2 on: February 27, 2012, 05:46:50 am »
Quote from: Larry on February 26, 2012, 08:16:52 pm
Two and a half years post radiation treatment on my AN that had re-grown following surgery, my AN has not grown any more.

This is what the radiation treatment is designed to do so at this point, I'm quite pleased. Would have been better if the growth had shrunk a bit but hey. beggars can't be choosers.

The plan is for a MRI in 12 months and then every two years.

Laz

Shame you can't see the smile on my face while reading this news!   ;D  ;D  ;D  ;D

Oh, dear PBW Chronologer, MAJOR congrats from the Cursed Cruise Director! I am SOOOOOOOOOOOOOOOOOO thrilled for you! BTW, next time you come stateside, please make Boston part of the trip!  :)

Congrats!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!    :-*  :-*  :-*

Signed,
Um, I know her name.... I just left it somewhere......
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: Good news for Laz
« Reply #3 on: February 27, 2012, 02:53:45 pm »
Laz ~

I'll get right to the point: congratulations! :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tumbleweed

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Re: Good news for Laz
« Reply #4 on: March 13, 2012, 09:43:39 am »
Congratulations, Laz! I know you had a tough row to hoe for awhile there, when the regrowth was first discovered. I'm thrilled to find out your radiation treatment was successful.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

leapyrtwins

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Re: Good news for Laz
« Reply #5 on: March 15, 2012, 08:57:29 pm »
Congratulations, Laz!

Celebrate!!!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Brewers7

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Re: Good news for Laz
« Reply #6 on: March 24, 2012, 09:05:22 pm »
Congrats!
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

Mei Mei

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Re: Good news for Laz
« Reply #7 on: March 28, 2012, 12:30:31 pm »
 ;D   Congrats and Hugs to you.    You have a lot behind you and a lot to look forward to.
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
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Larry

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Re: Good news for Laz
« Reply #8 on: April 21, 2013, 06:29:21 pm »
Hi all, been a while but thought I'd give an update. I recently had my regular 12 month MRI and after 3.5 years now (post CK treatment), my AN has not grown. I am so happy that I decided to have radiation treatment.

cheers

Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

leapyrtwins

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Re: Good news for Laz
« Reply #9 on: April 23, 2013, 12:24:18 pm »
Excellent news, Laz!

Thanks for updating us,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: Good news for Laz
« Reply #10 on: April 23, 2013, 05:03:31 pm »
Hip Hip Hooray for LAZ!!!
Logged
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Tumbleweed

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Re: Good news for Laz
« Reply #11 on: May 18, 2013, 09:04:49 pm »
Hi, Laz:

I've been off the forum for the past month, so I'm just now getting around to reading this. I'm so happy your CK treatments have been a success. Congratulations!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Mei Mei

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Re: Good news for Laz
« Reply #12 on: June 05, 2013, 04:48:20 pm »
YIPEEEEE!!!! for you, LAZ.   You made the right choice.
Mei Mei
Logged
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Nannybee

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Re: Good news for Laz
« Reply #13 on: June 29, 2013, 08:52:31 pm »
Great news!!
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AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

Kathleen_Mc

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Re: Good news for Laz
« Reply #14 on: June 29, 2013, 09:05:10 pm »
 ;D
Wonderful news
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1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)
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