D Day!!!!!!!!!!!!!! MRI TODAY

[pjb]

pjb,
   WE had a weather front come through with bad storms and I think as in everything the barometric pressure changes can affect your ear issues no matter what they are just like arthritis and other things.   Ray

I was wondering Saturday if the weather could make my balance issues worse.  We went to an art festival, there was a horrible thunder storm and my balance was way worse than normal.  Would be interesting to find out.  I'm sure the barometric pressure does affect it.  Oh goody, hurricane season ought to be real fun!!!!   

Karen

Weather definitely has a lot to do with it a very intelligent woman I use to work with swore by the barometric pressure both for arthritis and her Meniere's disease..

Best Wishes,

[pjb]

chloes,
    I think the pressure does affect everything.  Today has been a really bad day, the noise in my ear is back very loud and 80% of today both eyes the lids have been twitching upper and lower, wow at the same time.   Now that is something really hard to deal with.   Anybody ever gone insane over these symptoms?  wow.

Ray

Not quite insane but getting close....

Best Wishes,

[pjb]

pjb,
   Hopefully I will not have to start going up the stairs on my butt! LOL  I've lived in 2 story homes through all the bad abdominal surgeries and somehow I managed to get up those stairs when I needed to and through most of those surgeries I can home alone with no help so I am pretty tough but now I do realize balance issues can put you down.   The noises in my ear seems to evolving from one frequency to another, right now I have a buzz,hum and the ringing LOL.. enough to drive you crazy but nothing as loud as it was this Saturday.  WE had a weather front come through with bad storms and I think as in everything the barometric pressure changes can affect your ear issues no matter what they are just like arthritis and other things.   Thank God it is not that bad everyday right now, and maybe the steroids have helped a little too.

Ray

Hoping the steroids help I went back on Xanax I have been off it for a month or so but started again trying not to be dependent on them but now it is quality of life... The tinnitus others have said that they ignore it I am not at that point right now...Like I think I said before I think, I have the Widex and the Zen is somewhat soothing there are other settings that do help a little in loud environments..At least you know you have the butt as backup if need be and hoping you will not have to resort to that...Wishing you a good day!

Best Wishes,

[crv1200]

pjb,
  I just hate to think all these symptoms we have to live with the rest of our lives no matter if I had the tumor or Meniere's disease.   My balance is getting worse and other symptoms that the DR doesn't even know about because after he said something about looking for an AN he told me not to research it because it would upset me., so now I am afraid to tell him everything because he knows I've looked but I've got symptoms that I had been having and come to find out they are related but the MRI next week will show hopefully nothing but space in my head LOL

Ray

[chloes mema]

pjb,
  but the MRI next week will show hopefully nothing but space in my head LOL

Ray

Ray

Thanks for a good chuckle on this, I really needed one today.   

Karen

[crv1200]

Better to laugh than to cry I always say!  Glad I could help!


Ray

[crv1200]

I am suddenly experiencing Distance Vision issues, I can't see the TV clearly and driving, doesn't matter if I had my contacts in or my Glasses, my close up vision is perfect, I just had my eyes checked in January and this is just since I've been taking Steriods which I had 3 days left on.   Could it be the Steriods?  Or does an AN cause these issues?

Ray

[Kathleen_Mc]

Ray: did a doctor tell you to use melatonin? Just curious because I developed a sleep disorder years after my AN was removed and the specialist told me people who have had brain surgery, and thus scar tissue in the noggin', shouldn't use it, not safe.
You may find your sleeping problems improved once the tumor is removed, mine did.......my sleep disorder now is due to shift work.
Kathleen

I am interested in that your doctor said not to use it I was given Ambien to sleep and sometimes I do Melatonin instead now really concerned if I am doing more harm than good I just want to sleep?


My doctor was addressing MY using Melatonin and you must remember I am post-op from AN, I think it's an issue to do with scar tissue from the surgery. Not sure about the use pre-op but you should just make sure it's OK with your doctor, they would know.
Kathleen

Best Wishes

[crv1200]

Kathleen,
   I've never talked with my ENT about my sleeping issues, only been having issues with going to sleep and staying asleep probably 30 yrs.   I will ask him about Melatonin though.   Thanks :-)

[pjb]

pjb,
  I just hate to think all these symptoms we have to live with the rest of our lives no matter if I had the tumor or Meniere's disease.   My balance is getting worse and other symptoms that the DR doesn't even know about because after he said something about looking for an AN he told me not to research it because it would upset me., so now I am afraid to tell him everything because he knows I've looked but I've got symptoms that I had been having and come to find out they are related but the MRI next week will show hopefully nothing but space in my head LOL

Ray

Love the nothing but space in your head.....Lol.... Glad we still have our sense of humor they cannot take that away from us...

Best Wishes,

[crv1200]

Yeah me too.  If I could not laugh I would go crazy.   My ear has gotten worse and today I can barely hear anything at all out of it so it's almost gone., I am so scared.  The DR's do not want me to believe it could be a tumor and I am so anxious and dreading the MRI too., it's not funny but what to do?  Take a day at a time.

Ray

[pjb]

Yeah me too.  If I could not laugh I would go crazy.   My ear has gotten worse and today I can barely hear anything at all out of it so it's almost gone., I am so scared.  The DR's do not want me to believe it could be a tumor and I am so anxious and dreading the MRI too., it's not funny but what to do?  Take a day at a time.

Ray

I wish there was something to say to your statement of being scared but there isn't just hoping for the best and to know that we are all here if you need to vent. So easy to tell someone not to worry and not be anxious but come on impossible the only thing to try and do is keep yourself busy somehow and only you can decide as to what to do (i.e. read, walks etc.) try to surround yourself with positive things but with the ear it is difficult I try to put the t.v. louder but the noise still overrides it ... Yes take one day at a time is all we can do but just to know that others can relate to us helps me I have found so many friends on another AN site that has helped me so much these past few weeks some have made me laugh so hard where my belly hurt it has been a very long time since I laughed that much.

Best Wishes,

[crv1200]

It's comforting to know we are not alone but at the same time some of the things I've read on here breaks my heart.  People have complications from the surgery etc.   Trust when I say almost every surgery I've ever had I had complications so I sure enough do not want to have any more but IF and that's a BIG IF according to the DR I have an AN with the symptoms I'm having it would have to be a large one, if not then I must have the worst case of meniere's disease known to man! LOL It just don't fit.   But the thought of never getting my hearing back in my left ear is the worst part.   But if other people can deal with it I can too.  Thanks again for the encouragement

Ray

[Crazycat]

Sorry it's taken so long to say something as it is only now that I came across this thread.

Ray, I can empathize with what you're going through. Good luck on your MRI this Wednesday.

[crv1200]

Thanks  Crazycat,   
    I am heading out in a few for my pre-op visit with the Anesthesiologist since I am going under General.   My hearing got worse over the weekend and now I have very little left in my left ear.  The roar is so loud I can't get a TV loud enough to over ride it and loud sounds are piercing so no relief for 3 days now.   I had a little break in that roar last week but my hearing never changed until the weekend for the worse.   Weirdest thing I've ever had to deal with.


Ray