Hi
I had GK stereotactic radiotherapy just over two years ago. Follow-up MRI a year ago showed AN being destroyed internally, next one due in 9 months. I'm wondering if there's still time for improvement in my symptoms. Compared to others I'm probably not doing too badly but still suffer from -
Dry eyes/blurry vision - I use drops, particularly at night. My optician doesn't seem to have knowledge of ANs and says it's floaters so not much can be done.
Balance problems - I haven't yet found a way to describe my feelings or read of anyone having similar. I have no problem balancing, standing on one leg etc. it's more a feeling of disorientation or feeling remote from my surroundings. I hardly notice this indoors but when walking around outside.
Poor concentration and inability to retain new information. I'm struggling with many aspects of my job.
Low mood and feelings of nothing to look forward to even when there is and how I will cope with any of life's difficulties.
Tiredness, and falling asleep easily if I sit down during the day. I fall asleep immediately at night but wake in the middle of the night and even if I get a good night's sleep feel worse when I wake up than when I went to bed.
"Headaches" - but meaning sharp twinges or pain from the AN site.
Inability to cope with stress, the smallest problems cause pressure in my head and feelings of panic.
Am I unusual to still be experiencing all this! It's a year till my next followup appointment.
