Hi All,
Well, after almost 8 weeks, we are finally home from the hospital. We came home on Tues. Aug. 8th and like the saying goes, "There's no place like home". Therapy continued without much of a break. An RN came Wed. morn to evaluate her and her speech and physical therapist followed. The RN will be back today and the OT comes tomorrow. She came home with a feeding tube (G-tube) as she still has no swallow. We are all hoping this will return within the next month or two.
We never could get her matted hair brushed out after trying all detanglers, conditioners, mayonaise, and peanut butter. She said this morning to just cut it off. I'm glad this is HER decision. Some of things that are bothering her are stiff neck and pain on AN side and headache and pain at the incision site. Doctor said this is to be expected.
She will be seeing an eye surgeon in a couple weeks to discuss correcting the tracking in the right eye. Then at the end of the year she'll return to UCLA for 6 weeks of radiation (5 days per week). I know this will be a long and on going journey of ups and downs for Chelsea but she has so far been nothing but positive which will contribute to her rapid recovery. Her friends decorated the entrance of the house with WELCOME HOME CHELSEA and her room was filled with balloons, flowers and posters of encouraging quotes and photos of happy times. Within and hour of being home she had a steady flow of friends that came to visit. She was able to use her voice non-stop and the next morning her voice was a little bit stronger. The speech therapist said talking is one of the best exercises she can do to regain her voice.
She gets tired easily and I wonder if the beta-blocker that they have her on to lower her heart rate isn't contirbuting to this. I'm sure it doesn't help.
Chrissmom and Taylor.. How's everything going?? Taylor, when is your eye surgery? How are you feeling?
To All....Thanks for the prayers and support. Michelle
