Hi , I am new and was told in May@ NYU that I have 3mm acoustic neuroma in my left ear. I am currently at watch and wait. I had been too a bunch of neurologist, ent doctors no one could get it , it started with a balance problem and very slight hearing loss. Although the news was not the greatest, I was relieved to find what I thought was the problem, only to realize that I might have two problems , one being the tumor, the other is still up in the air, is possible dystonia. When this first started in early Jan 12, I was just veering to left, then later approximate mid March is when my Trunk started to sway and move rapidly. The last Dr that saw me a Dr Golifinos,@ NYU a great neurosurgeon said yes, that is a tumor small in size but your gait movements are not consistent with that size tumor, told me to see a movement specialist Dr Pourfor also @NYU. He was a very good Doctor, took his time to look at my balance and gait problem, that's when he mentioned Dystonia to me. He wasn't quick to diagnose me yet, wants to review my other doctor visits , records mri's, etc, there maybe more tests to come he said., that's all fine and good, but now I am in another place of waiting for what next. So I guess here is my long question, does anybody have this kind of movements of the midline trunk and sometimes neck, dystonia type movements related to this small size tumor? I mean I do have poor balance also, but never have I fell, mostly I sway or rock at times when it is really bad, thanks for any help, Pete
