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Author Topic: 2.5 year post proton radiation MRI  (Read 4233 times)

lholl36233

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2.5 year post proton radiation MRI
« on: June 27, 2012, 12:12:53 pm »
Size and hearing are stable.  Go back in 2 years.  Can't complain.   

Laura.  ;D
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Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

MDemisay

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Re: 2.5 year post proton radiation MRI
« Reply #1 on: June 27, 2012, 12:42:46 pm »
Laura,

Good for you!!!! ;D ;D ;D ;D Good to hear of your test results. I, personally, am 3 weeks and 2 days without symptoms from GK my first test date will be I suppose June 11, 2013. I can't wait, but I do want to go symptom free for as long as possible!

 Have a good long summer! I know I will. I'm relishing the silence that used to be occupied by dread of the uncertain future!

Congratulations!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Jim Scott

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Re: 2.5 year post proton radiation MRI
« Reply #2 on: June 27, 2012, 03:25:53 pm »
Congratulations, Laura!   :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

BeckyMax

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Re: 2.5 year post proton radiation MRI
« Reply #3 on: June 27, 2012, 07:36:20 pm »
Thanks for posting, I'm considering proton therapy if the time comes.

Glad to hear you are stable.

Becky
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7mm x 5 mm Left AN, diagnosed 2/9/12
7mm x 6 mm  8/12
9mm x 7 mm  8/13
Cyberknife 12/13

akoo

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Re: 2.5 year post proton radiation MRI
« Reply #4 on: July 24, 2012, 01:20:21 am »
Hi Laura,
Great that your hearing has improved... I had FSR and since my hearing has been getting worse.
I been trying to find out what is the bill for Proton Therapy. May I know what was yours?
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AN Diagnosed 28 Apr 2010 - 26x19x18mm
Radiosurgery 24 May to 1 Jun 2010 - 50.4 Guy, 28 sessions
MRI on Jan 2011 - 26x19x16mm
MRI on Jan 2012 - 26x18x16mm
MRI on July 2012 - 25x18mm

lholl36233

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Re: 2.5 year post proton radiation MRI
« Reply #5 on: July 24, 2012, 02:47:58 am »
Hi,  I never saw a bill for my proton radiation, not even a copayment.  Good insurance.  I have no regret.  The whole experience turned me into a huge snob for mass general in Boston.   :)
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Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

ppearl214

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Re: 2.5 year post proton radiation MRI
« Reply #6 on: July 24, 2012, 04:38:20 am »
Quote from: lholl36233 on June 27, 2012, 12:12:53 pm
Size and hearing are stable.  Go back in 2 years.  Can't complain.   

Laura.  ;D

What can I say? :)  MAJOR congrats!!!!!!!! Here's hoping you and Mom (and all!) are celebrating this wonderful news! :)

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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