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Author Topic: facial paralysis  (Read 3076 times)

Karen

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facial paralysis
« on: July 18, 2012, 05:47:31 pm »
do es anyone know if synkinisis can start after 8 years   I had the 12/7 done,  and have facial numbness still   Lately my eye seems to  be closing when I eat  more often and the face feels number if that's possible!!!   I had a mri last year and it     showed no regrowth


Any ideas?   
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Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

nancyann

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Re: facial paralysis
« Reply #1 on: July 28, 2012, 03:10:11 pm »
Hi Karen  - I'm at 6 years & no movement, no synkenesis - but my facial nerve was cut & I didn't have the 12/7 done. Sounds like good news to me with the eye closing, even if it's only when you eat. Maybe a trip to your neurologist to find out what's happening, & maybe find a facial therapist to work with you. Best wishes, always good thoughts, Nancy.
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

alabamajane

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Re: facial paralysis
« Reply #2 on: July 29, 2012, 11:47:28 am »
Hi Karen,
I had translab 9 mos ago and had 12/7 4 days later.. my eye also closes when I eat but also have eyelid weight in it.. I am so soon after surgery that I just take each movement as positive direction...... Dr told me I would be at least 12 mo out before most movement returns.. I have MRI scheduled in Sept. so am just waiting till then to talk to him.. It is frustrating but as I say, I see more facial movement also, so am just "dealing" right now.. I think it has to do with the tongue placement in your mouth due to the 12/7 graft, and maybe with some time I can "learn" not to close eye while chewing,, but that will be after eye weight is out I am sure... probably not much help,, but at least you know there are more of "us" out there experiencing it.... best of luck and let us know if/when you find out anything else to do.. I have not started with facial retraining as I am so "new" to this paralysis..... Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

Brewers7

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Re: facial paralysis
« Reply #3 on: August 10, 2012, 09:59:55 am »
Nancyann,
Is the T3 considered a static procedure?  Susan
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010
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