Author Topic: My Book -- Hell In The Head  (Read 17371 times)

LADavid

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My Book -- Hell In The Head
« on: August 04, 2012, 01:04:06 pm »
First, a big thanks to Kay for letting you all know about this.  You're a good friend, Ms Kaybo.  As some of you may remember me, I was an active Forum participant several years ago (until I got sidetracked) and a contributor to the ANA Newsletter.  Over the time that I participated, the one thing that struck me as odd was the number of questions newbies and even some old posties had -- myself included.  It seems to me that something as life-changing as an AN shouldn't be shrouded in mystery -- at least for folks like us who didn't spend 12 years in medical school.  So I set out to write a book about my medical mystery tour in terms that a simple guy like I am could understand.  I may or may not have achieved that -- two years researching mega-syllable Latin terms causes one to go braindead.  The book is called Hell in the Head.  The title refers to two hells -- one our little AN friend; the other the doubt and fear and lonliness and depression that cripples us and who we are when things don't go right.  As I was writing the book, it occured to me what a profound affect the Forum had on my post-surgery life -- including the discovery that I, one, had synkinesis and, two, that it was permanent -- no one else clued me in on that.  I credit the Forum and the ANA for my support and enlightenment throughout the book.  But I'd like to take a moment now to thank all of you for the part you played in making this book happen.  It is greatly appreciated and will always be remembered.  You guys rock.  You are my family.
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

CHD63

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Re: My Book -- Hell In The Head
« Reply #1 on: August 04, 2012, 01:36:42 pm »
David .....

You were such a tremendous support to me, not only before my second AN surgery by your posts on the forum, but also physically by taking the time to come to St. Vincent's to see me and you, Nancy, and Lainie leading us on our special tour of down town Los Angeles ..... a day neither Truman nor I will ever forget!

I can hardly wait for your book to arrive on my doorstep ..... no one better bother me until I have read it "kivver to kivver!!"  :o ;D

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

alabamajane

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Re: My Book -- Hell In The Head
« Reply #2 on: August 05, 2012, 10:43:25 am »
David,
Thanks ahead of time for writing a book about "these things"  as so many people have never heard about them until we get one and then "shock and awe or is that dread" take over...and it is hard to think of anything else.

I have had my surgery, but still am eagerly awaiting reading your book and I am quite sure that it will help many on "both"sides..
Best of luck to you and the book,, Jane
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

MDemisay

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Re: My Book -- Hell In The Head
« Reply #3 on: August 06, 2012, 12:49:58 pm »
LADavid,

I was thinking something as I was about to order it on my Kindle, I thought to myself, if my Kindle is my personal reading device, how will I be able to share this wonderful bit of information with others?

Then the answer came to me, why not buy 2 books online keeping one for myself and one to give to someone else?

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

leapyrtwins

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Re: My Book -- Hell In The Head
« Reply #4 on: August 06, 2012, 01:35:12 pm »
David,

thanks for writing this book for AN patients; something that was long overdue.

My copy just shipped from Amazon this morning and I'm anxious to read it.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JW123

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Re: My Book -- Hell In The Head
« Reply #5 on: August 10, 2012, 06:37:12 pm »
Looking forward to reading. Going to order mine soon!

Thanks!
Left side VS - 2.0 x 2.7
Retrosigmoid on Oct 17th 2011
Surgery at Mayo Clinic with Dr. Link & Dr. Driscoll
SSD left side, delayed temporary facial weakness, ongoing severe headaches.

millie

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Re: My Book -- Hell In The Head
« Reply #6 on: August 10, 2012, 07:26:52 pm »
I had been thinking a book  on this topic was in order!
I am ordering  tomorrow.

lrobie

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Re: My Book -- Hell In The Head
« Reply #7 on: August 10, 2012, 08:20:45 pm »
Unfortunately, I don't think there is a Kindle version.  At least I couldn't get it to come up on Amazon.  Anybody else?

Lisa
6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

MDemisay

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Re: My Book -- Hell In The Head
« Reply #8 on: August 13, 2012, 05:46:52 am »
Dear Lisa,

I thought I was experiencing technical problems with my Kindle as well. For the life of me, although I tried several times, I did not succeed! We just have to demand that Amazon do something go the distance by making it available on the Kindle. Perhaps if enough of us "request" it they will see the error and make it available!

After all, is it not the very purpose of the Kindle?

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

JWW

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Re: My Book -- Hell In The Head
« Reply #9 on: August 13, 2012, 07:44:11 am »
I ordered LA David's book: Hell in the Head from Amazon. I think it is a GREAT read!
So impressed that one of OUR forum members would take the time to put the details of an AN journey in lay terms, in a book. Bravo to you David!!! Thank you, thank you, thank you!

JW

alabamajane

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Re: My Book -- Hell In The Head
« Reply #10 on: August 13, 2012, 03:35:51 pm »
David,
I am helping you get off SS diasbility... I ordered two.. free shipping..  :P

Mine came Sat. and I have read for about 4 hrs straight so far and love it.. especially us Posties that have facial issues or any unexpected issues.. GREAT so far,, gotta go fix supper and then on to more reading.. and I don't even like to read books.. sad as that is to say... can't put it down..
BIG thanks for getting this viewpoint and info out there for all of us ANers.... best of luck to you!! Jane
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

Sue

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Re: My Book -- Hell In The Head
« Reply #11 on: August 13, 2012, 05:19:52 pm »
Read the book.  Loved the book. 
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Keri

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Re: My Book -- Hell In The Head
« Reply #12 on: August 15, 2012, 09:28:08 pm »
I haven't ordered mine yet but am going to soon!

Thank you, David!

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

alabamajane

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Re: My Book -- Hell In The Head
« Reply #13 on: August 19, 2012, 07:08:40 pm »
great book, David!
A must read for "newbies" and wonderful resource for anyone. . much info in it..and easy to understand.. I will highly recommend to anyone dealing with ANs... thanks so much ,, just wish it had come out a little sooner,, I had surgery last Oct.... but wonderful info.. Jane
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

G_Man

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Re: My Book -- Hell In The Head
« Reply #14 on: August 19, 2012, 10:12:22 pm »
David
    I'll be watching for this to come out as an audiobook either commercially or through NLS or maybe even bookshare.  I would love to read it but reading print books is a bit rough.
Glen
Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.