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Author Topic: Seven Year Anniversary  (Read 4703 times)

Jeanlea

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Seven Year Anniversary
« on: September 06, 2012, 09:09:47 pm »
It's been 7 years today since my surgery. When I think back on how much change I've gone through I'm happy to be where I am today. Right after my surgery I could not move the left side of my face at all. Now I'm able to make a pretty good smile that is almost as big as it used to be. I've adapted to an eye that is always filled with ointment. But I've also started running. It's not scientific proof, but I feel like it has helped my face get back so much of it's movement and even a little bit of feeling.
Even though I don't come to this site that much any more, I want to let everyone here know how much help and encouragement that you've given me when I've needed it.

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

jazzfunkanne

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Re: Seven Year Anniversary
« Reply #1 on: September 07, 2012, 01:54:21 am »
great your doing so well jeanx
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over 4.5cm AN removed dec 06

ppearl214

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Re: Seven Year Anniversary
« Reply #2 on: September 07, 2012, 04:55:51 am »
Jean!  Wow a long road but look at you and this update!   :-*  :-*    Sending wishes for continued wellness!

Congrats!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

CHD63

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Re: Seven Year Anniversary
« Reply #3 on: September 07, 2012, 07:53:48 am »
Jean .....

Thanks for the great update.  It helps others to know how well you are doing.  Yaaaaay for the running post AN!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: Seven Year Anniversary
« Reply #4 on: September 07, 2012, 11:51:25 am »
Jean ~

Congratulations on your continued recovery!  Thank you for the encouragement you bring to AN patients.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

It is what it is

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Re: Seven Year Anniversary
« Reply #5 on: September 07, 2012, 12:35:54 pm »
I appreciate you and others sharing updates this many years after your treatment.  Hooray for healing!  :)
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Jeanlea

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Re: Seven Year Anniversary
« Reply #6 on: September 07, 2012, 05:45:28 pm »
Here is my "7 years later" pic. Sorry, but for some reason I still haven't figured out how to make them smaller.
« Last Edit: September 08, 2012, 08:04:47 am by Jeanlea »
Logged
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Brewers7

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Re: Seven Year Anniversary
« Reply #7 on: September 07, 2012, 07:05:24 pm »
Thanks for the update.  I have appreciated all your posts over the past few years.
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

alabamajane

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Re: Seven Year Anniversary
« Reply #8 on: September 08, 2012, 10:41:53 am »
congrats on anniversary.. and you look great! Gives some of us newly post ops some hope of better things to come.. good luck in the future and thanks .. Jane
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

Mei Mei

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Re: Seven Year Anniversary
« Reply #9 on: September 08, 2012, 10:45:40 am »
Congratulations on your anniversary.   Your thoughts on this and other posts give us all a lot of comforting motivation.
Thank you,  Jean
Hugs,,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

leapyrtwins

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Re: Seven Year Anniversary
« Reply #10 on: September 08, 2012, 06:35:25 pm »
Hey, Jean, great to see you back here!

Congratulations on your 7th year ANniversary!   ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Seven Year Anniversary
« Reply #11 on: September 09, 2012, 08:00:37 pm »
Jean~
You were the one who really reached out to me when I came on here first - glad that you are doing so well!!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!
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