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Author Topic: One year MRI today  (Read 2863 times)

LakeErie

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One year MRI today
« on: October 15, 2012, 01:24:22 pm »
My surgery was Oct 6, 2011. The operative report characterized it as  an "aggressive subtotal resection of 95 - 97% of the tumor." Residual tumor was left on the brain stem and facial nerve.
Today's MRI report is " stable residual schwannoma size."
My neurosurgeon said the residual tumor left behind looks so good I can wait 2 years for the next MRI. So far so good.
My voice is probably 90% recovered and swallowing is 80 - 90% normal. Both are huge improvements over where they were 12 months ago. Numbness in and around my lips and chin persists, as does occasional tingling on the right side of my face. There are no complications from my surgery that are a problem. I get used to them more and more over time.
What a difference a year makes.
« Last Edit: October 15, 2012, 02:57:23 pm by LakeErie »
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Tod

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Re: One year MRI today
« Reply #1 on: October 15, 2012, 05:38:02 pm »
Great news! I hope your recovery continues to be successful.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

LakeErie

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Re: One year MRI today
« Reply #2 on: October 15, 2012, 07:18:48 pm »
Thanks, Tod. The doctors tell me there is still time for a little more improvement, but nothing major. They sometimes see recovery to 18, and sometimes as long as 24, months from surgery.

I have wondered how your recovery is progressing as I haven't seen many posts from you lately. I hope it is because you are busy with normal activities following your radiation treatments last winter. Good luck.
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Jim Scott

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Re: One year MRI today
« Reply #3 on: October 16, 2012, 12:57:23 pm »
LE ~

Your one-year MRI update is appreciated as it demonstrates that, where AN surgery is involved, time is often on our side.  May your healing continue.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

It is what it is

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Re: One year MRI today
« Reply #4 on: November 26, 2012, 08:07:54 pm »
It was great to hear your news.  Over a year since surgery and your positive healing since then in different areas is encouraging. 

karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Chances3

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Re: One year MRI today
« Reply #5 on: November 27, 2012, 11:32:28 am »
" What a difference a year makes " - Amen to that LakeErie.  Great news about the MRI, continue to work hard towards further recovery.

All the best,

Bob
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