Author Topic: Life after AN  (Read 2954 times)

kiwi

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Life after AN
« on: December 18, 2012, 03:08:39 pm »
Hello

Its been a while since I posted in this forum and just wanted to let all those that remember me that I am well, my scans are clear although I clearly now have an allergy to Gadolinium!!!  Nothing like a shot of Hydrocortisone and Fenergen before I can even begin to have an MRI.

Anyway I now have a little boy who was born on the sam day as my surgery one year later. What an omen that was...He is nearly 2 years and I am nearly 3 years post op.  I have had no further CSF leaks and not many other problems, still have paralysis on my left side of my face but its not too bad only a grade 2.5 according to my specialist.  I cope well with SSD and my other ear has compensated well.

Life is good and I didnt think I would cope after the surgery but time has helped me cope and move past this terrible ordeal.  Wont ever forget it but am not going to dwell on it either.

Good luck to all those having surgery, straight after the surgery is usually the worst but it will get better from there...

Merry Xmas everyone

Jacqui
3.6cm AN Left side diagnosed Dec 09.
Translab surgery 16th March 2010
Left SSD, Facial Paralysis
CSF Leak surgery 11th May 2010

Jim Scott

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Re: Life after AN
« Reply #1 on: December 18, 2012, 04:14:32 pm »
Hi, Jacqui ~

I'm delighted to learn of your excellent recovery!  Please accept my belated congratulations on the birth of your son and my appreciation for posting your encouraging message.   :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

millie

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Re: Life after AN
« Reply #2 on: December 19, 2012, 06:55:44 pm »
Thank you Jacqui!  I am two months post op translab and I very much appreciate your message.  I am still not driving and feel sort of off balance when walking or disconnected in my head, but your post makes me hopeful.  You are so right-immediately after the surgery it seems one will never get back to normal, but thank you for reminding us to believe in the process.
Merry merry Christmas and congratulations on your baby blessings.  Mil

cherrypiper

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Re: Life after AN
« Reply #3 on: December 21, 2012, 09:20:13 pm »
WONDERFUL NEWS KIWI...........  i remember you!!!!!!!

thanks for the update.
10 mm x 2.4mm surgery date 12/03/07

glad to be here

leapyrtwins

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Re: Life after AN
« Reply #4 on: December 27, 2012, 08:01:20 pm »
Thanks for the update.  Great to hear from you  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

rachelnyc

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Re: Life after AN
« Reply #5 on: December 27, 2012, 09:12:00 pm »
THats really encouraging to hear.

I was diagnosed 3 months postpartum and was devastated. Im having surgery in 9 days and my little one is 5 mos. We wanted to have more children soon and hearing that you got pregnant right after is remarkable. Good on you!
Left AN 2.5 cm
4 sudden hearing loss episodes with fullness and dizziness since 2008
Retrosigmoid 1/9/13 NYU Golfinos & Roland
Complete tumor removal but have SSD, facial palsy, external eye-lid weight (Blink-eze)