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Author Topic: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!  (Read 6956 times)

MDemisay

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Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« on: January 29, 2013, 12:31:22 pm »
Friends,

I came across this piece of paper listing the names of our top nemises', our enemies! I am wondering what happened to all of them , I am certain of one thing DEAD IRV is still dead.

Here 's a complete list:

1. DEAD IRV irradiated 6/11/12

2. Alvin

3. brain booger

4.Bob (kill Bob)

5.Herman (Tom)

6. Gonzo

7. Quatto

8. Bennie

9. Itsy & Bitsy

10. Freddy

11.My little visitor

12. the hitchhiker

13. Ethel

14. Lucy

 As it says above feel free to add yours as it helps vastly before treatment to shrink it down in your minds eye. (for newbies and watch and waiters especially!)

Good luck!!!! Collective Death to the things we thought we had NO control over! If you wish it, it is in your power to make it so!


Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

KBL

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #1 on: January 29, 2013, 04:47:37 pm »
3 years ago today, Ursala was debulked.  Cyber knife was to follow.  In April I will have another MRI to see if we can figure out if Ursala is dead, or what her current status is at this time.
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5.6 cm. left side retrosigmoid surgery January 2010.  Dr. Villavicencio, Boulder, CO  Cyberknife April 2010  Left side  facial paresis started September 2010.  Gold weight implant Dec. 2010.  Total hearing loss on left side.  As of today, tumor still appox. 28x18x8 mm

arizonajack

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #2 on: January 29, 2013, 06:30:58 pm »
ALF - Alien Life Form

Got zapped last week with phasers set on kill.

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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

MDemisay

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #3 on: February 08, 2013, 05:26:50 pm »
Guys,

How about for you newbies in honor of the 2013 Blizzard of the same name~~NEMO. You remember the Disney movie by the same name~ the little clown fish?

 Can you think of any others?

 Trying to inspire your confidence to conquer this, if we think about it, that's the first step to the often ardous, tediuos process of elimination of our collective nemises!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

arizonajack

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #4 on: February 08, 2013, 07:13:25 pm »
Here's a few names inspired by the movies and TV.

The Tingler

HAL9000

Abby Normal

Little Buddy


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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

nicole927

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #5 on: February 14, 2013, 10:35:08 pm »
I'm a big fan of the BBC miniseries Sherlock, and I've decided that if I ever decide to name my neuroma, it will be called Moriarty. The name of a such crazy nemesis seems befitting of the thing that's causing by far the craziest twist in my life!

So geeky, but it feels oh so right lol.
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Diagnosed on April 20, 2012 at age 23 with a 3mm acoustic neuroma in the left internal auditory canal

MDemisay

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #6 on: February 15, 2013, 12:48:39 pm »
Good choice Nicole!

I wish you the best of luck in defeating Moriarity! You seem to have captured the spirit of this! Congratulations!

 It is after all to visualize it, then to make it smaller or eliminate your AN altogether!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

chloes mema

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #7 on: February 16, 2013, 11:13:41 am »
Tom was CK'd May 2012

T - tormentor
O - of
M - mine

Now, since I have hemifacial spasms, I've given my left side of face / spasms a name "Picasso face" fits very well seeing as how it 'appears' my nose moves from the center to the left side of my face and the corner of my mouth is up the side of my face dramatically.   ;D 

Need to keep a sense of humor!

Karen
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Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

jbbrown15

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #8 on: February 16, 2013, 11:56:51 am »
Ivan (the terrible)
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Jean
2.9 cm AN on left side diagnosed 9/9/2010
Finished 26 sessions of fractionated stereotactic radiation on 11/22/2010
Symptoms of increased intracranial pressure since summer of 2010. Trying to determine if related to AN.  Some good doctors say yes, some good doctors say no.

arizonajack

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #9 on: February 18, 2013, 07:36:17 pm »
Cthulhu
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

TexasSprinter

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #10 on: March 06, 2013, 11:09:17 pm »
Timmy the Tumor.  He's still giving me the middle finger after surgery #1.
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Kathleen_Mc

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #11 on: March 19, 2013, 12:49:10 am »
Tina was removed in 1990....she tried to regrow but got knifed again and as far as I know that's the end of her!
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1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

arizonajack

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #12 on: March 20, 2013, 09:29:14 am »
ALF - Alien Life Form

Is now DALF - Dead Alien Life Form

Thanks to GK in January.
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

MDemisay

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #13 on: March 21, 2013, 05:45:17 am »
taway FRIENDS,

Keep them insignigant, small and powerless over ouur lives!  I am glad to see that you have mastered this one aspect of meditation.

Mind control. Things that are bothering us in our lives have a way of looming large until we step back and control them.

Success!

Mike
Logged
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

arizonajack

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Re: Top 14 AN Loathsome? names Do you recognize yours? Feel free to add!
« Reply #14 on: March 21, 2013, 08:45:30 am »
Right, Mike.

Mind over matter.

If you don't mind, it don't matter.

 ;D
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0
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