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Author Topic: The Schwannoma Song  (Read 7279 times)

arizonajack

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The Schwannoma Song
« on: March 03, 2013, 04:59:57 pm »
There's nothing funny about our tumors and I'm not trying to make light of anybody's condition but keeping one's sense of humor through adversity helps keep one's sanity.

So here it is - the Schwannoma song.

http://www.youtube.com/watch?v=52yucjy_Q8s&feature=relmfu

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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

Susan A

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Re: The Schwannoma Song
« Reply #1 on: March 03, 2013, 06:01:33 pm »
"Like!"
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2011 8 x 7 mm AN, & 20 x 22 mm M found, both on the left. Mosaic NF2 diagnosed. Some hearing loss
2014 hearing 30% on left, now using hearing aid (HA)
2015 Now have CROS HA - no longer hear enough for HA to be useful in AN ear
2016 Use an FM system on occasion at work to supplement HA

alabamajane

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Re: The Schwannoma Song
« Reply #2 on: March 03, 2013, 06:14:30 pm »
Cute,, like it

Now if I could just get it "out of my head",(,pun intended),, song that is,, AN is history,,
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translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

KBL

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Re: The Schwannoma Song
« Reply #3 on: March 03, 2013, 07:00:17 pm »
 :D. That gave me a good laugh for the day!  Thanks for sharing.  I am having a bad day, so I really needed that.  Karen
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5.6 cm. left side retrosigmoid surgery January 2010.  Dr. Villavicencio, Boulder, CO  Cyberknife April 2010  Left side  facial paresis started September 2010.  Gold weight implant Dec. 2010.  Total hearing loss on left side.  As of today, tumor still appox. 28x18x8 mm

jamssp

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Re: The Schwannoma Song
« Reply #4 on: March 04, 2013, 08:51:08 am »
LOVE this!!  I'm going to be humming it all day. Maybe I'll belt it out as I'm being wheeled into the operating room!  ;D
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2 cm AN, Translab March 2013, Dr's. Gutin & Selesnick, Memorial Sloan Kettering, NY.
SSD but otherwise doing great!

MDemisay

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Re: The Schwannoma Song
« Reply #5 on: March 04, 2013, 03:51:22 pm »
Jack,

I have to admit this is an oldie but a goodie! I continue to be amazed by the power of inspiration......singing about it makes you stress less.

Mike
'
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

jsanders1379

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Re: The Schwannoma Song
« Reply #6 on: March 04, 2013, 05:33:13 pm »
we need to organize a flash mob of people singing this...
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Jeanne
Dx 10-25-2012
5x6x4 mm
3-27-2013 MRI 9x6x6 mm
GK  5-7-13 Swedish Hospital, Denver

chloes mema

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Re: The Schwannoma Song
« Reply #7 on: March 04, 2013, 05:49:13 pm »
Everytime I feel sorry for myself I go listen to this song!  I just love it!

Thanks again for posting the link again.   :D Actually, it's on my favorites list.

Just seems to lift the spirit!   ;)

Karen
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Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

arizonajack

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Re: The Schwannoma Song
« Reply #8 on: March 05, 2013, 10:04:31 am »
I thought I might have posted it before, but couldn't find it.

Anyway, here's another song to lift up the spirits. I've posted it before but here it is for those who haven't seen it yet or want to see it again.

https://www.youtube.com/watch?v=2hqS_lzNIlU
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

sidecar Kathy

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Re: The Schwannoma Song
« Reply #9 on: March 05, 2013, 05:54:59 pm »
How did that guy come up with that??  Watched it yesterday and had the song in my head all day.  Having Trans Lab March 14th and that song is def the way I feel about getting rid of my AN!!!
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chloes mema

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Re: The Schwannoma Song
« Reply #10 on: March 06, 2013, 04:46:01 pm »
Have to share...

Was playing the Schwannoma Song very loudly, all of a sudden my dog is sitting behind me hauling!!!   ;D

Poor thing, I probably had the volume up so loud it hurt his ears.

Karen
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Diagnosed October 2011
Oct '11-9 X 6 mm left ear
Mar '12 - 1.25cm
Tinnitus, imbalance, and mild dizziness (ditsy)
My AN = Annoying Nuisance
Jan'12 W&W
May'12 CK completed
Oct'12 hemifacial spasms
Dec'19 It's back

arizonajack

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Re: The Schwannoma Song
« Reply #11 on: March 06, 2013, 05:57:36 pm »
Quote from: chloes mema on March 06, 2013, 04:46:01 pm
Have to share...

Was playing the Schwannoma Song very loudly, all of a sudden my dog is sitting behind me hauling!!!   ;D

Poor thing, I probably had the volume up so loud it hurt his ears.

Karen

You had me going for a minute while I pictured a dog driving a semi.

 ;)

Then I realized you meant "howling."

 ;D
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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

TexasSprinter

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Re: The Schwannoma Song
« Reply #12 on: March 06, 2013, 09:44:32 pm »
This is hillarious.  I also have to laugh at my condition or else I'll go crazy.  I've nicknamed by schwannoma/AN, "Timmy the Tumor."  It has a better ring to it than Claude or Fred.   
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arizonajack

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Re: The Schwannoma Song
« Reply #13 on: March 07, 2013, 12:05:41 pm »
Quote from: TexasSprinter on March 06, 2013, 09:44:32 pm
This is hillarious.  I also have to laugh at my condition or else I'll go crazy.  I've nicknamed by schwannoma/AN, "Timmy the Tumor."  It has a better ring to it than Claude or Fred.   

I called mine ALF = Alien Life Form.

Now it's DALF = Dead Alien Life Form.

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3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

It is what it is

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Re: The Schwannoma Song
« Reply #14 on: March 11, 2013, 11:18:23 am »
Love it!!!!!  Thanks.   ;D
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.
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