March 7th 1 year post op

[mindyandy]

I am coming up on my 1 year post op Retro from House  . I am not gonna get into details about my history but many of the members here know my history. I still have my AN. My last MRI (last Aug) showed it slightly smaller  . I am sitting here thinking almost 1 year ago I was a nervous wreck. I'm very thankful for each and every member here for all your support.
My past year post op has been fairly uneventful. I'm thankful that I am pain free(no trigeminal neuralgia) and I still have perfect hearing. I did not come out of surgery totally unscaved because I do have what I believe to be facial myokymia. If you don't know what it is google it. I thought it was eye twitching but as I did some research this is what I believe it to be. It has not changed in a year. Same same. Drs didn't say much about it and if this is all I have to deal with then so be it. Nobody notices but me or unless I point it out. At least nobody has said anything.
I am going to email Dr. Friedman / Dr. Schwartz about my 1 years anniversary and I will mention this again to them. I'm sure they will just say it has not changed and it is not harming anything. I do from time to time still have slight numbness along the same areas that I did just after surgery. This is all from my trigeminal nerve. Nothing big and better than having pain.
Well here that is my 1 year update  I hope you all are doing well and if you have any questions ask.

Take Care
Mindy

[Chances3]

Hi Mindy,

Great to get that year behind you.  I have read your many posts, you're very helpful to the many Newbies that join this group.  Giving back is so important, and you do that all the time.  I hope you continue with good progress.

Bob

[mindyandy]

Thank you Bob. I do believe giving back is very important. I don't know what I would do if it wasn't for everyones help. This forum and the FB group has been nothing but wonderful.

[CHD63]

Hi Mindy .....

Good to read your one year report.  It sounds like for all you have gone through, you are doing amazingly well!

I will have to confess, I am one who did not know what facial myokymia was.  I did look it up and it sounds more annoying/aggravating to the patient, than harmful.  I pray that is the case for you.

And I agree with Bob that you have been so caring and helpful to all of us here on the forum!

Thoughts and prayers.

Clarice

[mindyandy]

Thank you Clarice. You know you are well loved on this forum.  I know not many others know what myokymia is. I did email Dr. Friedman & Schwartz to say thank you since it is my 1 year post op. I did mention that I have facial myokymia still. I just casually mentioned it and that I was doing well. He emailed back fairly quickly like he always does. Telling me congratulations on my 1 year. No mention of myokymia. So I know he knows and does not seem concerned. I've had it for almost a year now so....like you said more annoying than anything.

Mindy

[It is what it is]

Congrats on your one year.  Let us know if you learn anything differently about the myokymia.

Karen