Hi All - I'm 48 and all heck broke out in my body three years ago. I developed tremors, severe dizziness, balance problems, and joint pain (like frozen shoulder, knee pain, overall soreness, and foot neuromas). Fun times. I had been really healthy - organic mostly vegetarian type who exercised and had good social support, though a lot of stress. I was diagnosed with a tiny AN and essential (hereditary) tremor in 2010, and Fibro last summer. The AN tumor has blessedly stayed at only 2mm after three years of monitoring. Dizziness is mostly gone, but balance issues prevail. Acupuncture and Chinese herbs have helped ENORMOUSLY. I also did a few sessions of vestibular therapy.
I've seen there are some other folks with AN and Fibro on the forum through the search function. I wonder if most of my symptoms are from the Fibro and not the AN? That would certainly make me the poster child for watching and waiting with a small tumor! Not that it really matters, I suppose - I know many of us have several conditions that may be conflated. But I would love to hear from others out there who also have fibro. Have you been able to improve your balance? What kind of treatments have helped the most, particularly for those symptoms that are likely from both AN and Fibro, like balance, fatigue and brain fog?
The only meds I currently take are amatryptaline to help with sleep.
Thanks so much - Ellen
