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Author Topic: 9 Month MRI Post CK  (Read 2863 times)

moeson

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9 Month MRI Post CK
« on: October 24, 2013, 11:58:01 am »
I thought I would share some good news relative to my MRI results. My neurosurgeon just called to let me know that the MRI showed the tumor had a border of retraction away from the brain stem, as well as decreased enhancement. Although the tumor size was relatively stable, he said these are classic signs of necrosis after CyberKnife treatment. I needed this good news as my word discrimination score markedly decreased in my latest hearing test. As a result, I just got fitted for a Phonak Audeo Q this morning.

It is nice to take a step back and see how far I have come since my diagnosis last December. My balance is almost normal and nerve pain has diminished due to an extended taper course of prednisone which I intend to end next month.

Stay optimistic, my ANA friends!   
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MRI and Dx on 12/11/12, 1.7 x .9 x .8 cm
CyberKnife 1/23-25/13 @Capital Health Hopewell w/Dr. Lipani and Dr. Chen

theshawn65

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Re: 9 Month MRI Post CK
« Reply #1 on: October 24, 2013, 12:32:12 pm »
Glad to hear it, congrats on the good news!
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2.2 x 2.2 x 2.3cm AN -- 3 FSR LINAC Oct 23-25th 2013

robinb

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Re: 9 Month MRI Post CK
« Reply #2 on: November 03, 2013, 10:12:56 am »
Wow, that's great news in such a short time post CK!
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AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

Echo

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Re: 9 Month MRI Post CK
« Reply #3 on: November 03, 2013, 06:56:12 pm »
Always nice to read about good things happening and seeing progress! 

I'd love to hear how you like the Phonak Audeo Q once you get used to it.

Cathie.
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Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

moeson

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Re: 9 Month MRI Post CK
« Reply #4 on: November 06, 2013, 01:53:58 pm »
I am total enjoying the Phonak.  I was not looking for any miracle restoration, but rather a means to preserve muscle memory and maintain my somewhat diminished hearing. However, it has proven helpful in restaurant settings and while watching TV. I also love the enhanced crisp sound while walking over Fall leaves! Today I had the sound level bumped up from 70% to 90% of the target range and I really see a difference. I also asked the audiologist to pick up the pink noise volume for the tinnitus masking feature.     
« Last Edit: November 06, 2013, 01:57:32 pm by moeson »
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MRI and Dx on 12/11/12, 1.7 x .9 x .8 cm
CyberKnife 1/23-25/13 @Capital Health Hopewell w/Dr. Lipani and Dr. Chen

terisandler

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Re: 9 Month MRI Post CK
« Reply #5 on: November 06, 2013, 02:49:07 pm »
I have the Bolero Q with a custom earmold in my not quite totally deaf AN ear and it works very well!  I think my audiologist was surprised I have serviceable hearing now because my word recognition in that ear without any hearing aid is only 12%.  She thought I would gain the ability to hear sound but not understand speech.  I think I am discerning speech on the AN side.   ;D
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!
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