With a 2.5cm tumour successfully removed in Mar 2010, no post op complications , no facial nerve injury , and the miracle of maintaining a functional level of hearing in my an side, regular MRI , only showing scar tissue from the previous surgery.
You can imagine how devastated l felt to be told that the tumour had in fact begun to grow back.
Between 2 scans , which were 18 months apart,there is clear indication that tumour is in fact there, and growing larger.
Having consulted with both the brilliant surgeons, who had so successfully given me back such a wonderful quality of life, "How could this be ", ?
They both felt at the time that they had successfully removed all that they could see, l now find myself being a little overwhelmed with the thought of what to do next.
Surgery , with all its inherent risks, is it wise to attempt it again, if the outcome cannot be guaranteed. How many times can we face brain surgery ?
I do have the other option of radiation, l am currently 51, live in Australia, and l find it difficult at the moment getting enough long term information about how successful this treatment can be....
Trying to find other AN patients, who may have been down this path before, or even those who may be able to offer some advice.
My greatest hurdle is just trying to come to terms with the thought , that this is happening all over again !!!!.
For 4 years, l have just gone from strength to strength, and this has totally taken the wind out of my sails......
I would be grateful for any feed back on this issue