Author Topic: Follow Up MRI....nothing between my ears.  (Read 1857 times)

mnsmr

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Follow Up MRI....nothing between my ears.
« on: March 26, 2014, 03:33:25 pm »
Hi, I am just checking in to let everyone know my 2 year MRI came back clean....as such...nothing between my ears.
I re-posted my story from 2 years ago.

I just hope I can help calm the nerves of those who are dealing with this. I think my outcome is fairly common.


Hi...I am sharing my non-eventful AN experience in hopes it may bring some comfort to those struggling.

I had experienced hearing loss for a long time. Someone suggested I see a specialist, so I made my appointment with a clinic here in MN. The ENT doc was concerned so he had me schedule an MRI. The MRI confirmed a 2.6 or 2.7 cm right side AN. I made another appointment with their specialist. He told me that I was probably not a candidate for w&w or radiation, as it was pressing on the brainstem. He told me to get one more opinion before he would proceed.

I decided to go to Mayo for a second opinion. It was close and in my network. I met with Dr. Link and Dr. Driscoll. They confirmed everything I had been told.
Then....the real shock...they had a cancellation and told me they could perform translab the next day. Although I was unprepared to move so quickly, it was a real blessing since I was having a great deal of anxiety.

I had my pre-op physical, and discussed all my fears with the pro's at mayo. They are all amazing. My wife and I drove back home and picked up some stuff.

We returned to St Mary's early in the morning. I was prepped for surgery but my memories of even that are vague. I remember thinking they were finally wheeling me into the O.R., when I heard my wife tell me they "got the whole tumor and preserved the facial nerve." I was nautious for a few minutes, but then I was fine.
I did not experience any dizziness or balance issues. I am told its because the AN had already forced me to adust. The surgery lasted 11 hours.

We asked for a private room at St. Mary's. She ordered a cot and stayed with me the whole time. I was in the hospital for 4 days. (That weekend, the MN Vikings and Gophers won their games. I wondered if they reversed my football nerve.)

I was back to work in 5 weeks.

After my 3 month MRI and ok from the docs, I was back to my bowling league...my scores still stink.

The only symptom I have left is SSD. I actually had already adapted to that also. This was a huge relief since I play in a community symphony orchestra and have played violin all my life. I returned to rehearsals at the beginning of January. I think the SSD may have actually made me a better musician. I have to be very aware of dynamic balance for the sounds to blend.

The whole experience started at the end of September 2011. Surgery was October 27, 2011.  By far, for me anyway, the worst part of the whole experience was the anxiety between diagnosis and surgery.

I have never had any medical issues before. I am very thankful this turned out so well. I don't know how I can ever show enough gratitude to Dr. Driscoll and Dr. Link.

Hokiegal

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Re: Follow Up MRI....nothing between my ears.
« Reply #1 on: March 26, 2014, 07:25:20 pm »
Wow, great story!  Thanks for sharing.  Glad you had such a good outcome.  I also had my 2-yr MRI yesterday, and like you, nothing to report! 

I lol'd at your football comment.  My surgery was September 27, 2011, in Charleston, SC.  During my hospital stay, my team, Virginia Tech, played one of their worst games in history, against Clemson.  Well, here in the South, we women take our football VERY seriously, and my awesome nurse, Shannon, was a Clemson grad.  Since we had the game on TV in my room, Nurse Shannon seemed to check on me a lot.  Then I got to noticing LOTS of nurses in and out of my room.  Turns out pretty much the whole floor had either graduated nursing school from Clemson (so they wanted to see Clemson win) or from their archrival, the University of South Carolina (so they wanted to see Clemson lose).  Anyway, they ALL wanted to see the game, and I got LOTS of attention that night.  It was like a party in my room.  My Dad, not a football fan, just pretty much sat there taking in the nursing parade.  As I said, Virginia Tech choked in epic fashion that night, but the pain meds just made everything hilarious.  I remember laughing hysterically when it looked like our punter kicked the ball sideways for about 15 yards.  It was only after I was discharged that my husband broke the news that, no honey, that wasn't the meds, that actually happened.  Lesson learned:  if you gotta stay in the hospital during football season,  make sure the game's on TV in your room!   ;D
3.0cm AN diagnosed 08/11, age 47
surgery 09/11, Dr. Patel (MUSC), 95% removed
SSD with tinnitus, right side facial paralysis, vision and balance issues
facial movement much improved, and still returning after 3yrs
"We are better than we think, and not quite what we want to be."  Nikki Giovanni