Those of you with 3cm ANs. What were you offered? What happened?

[leapyrtwins]

Most docs won't radiation an AN over 3 cms.

At the time I was diagnosed my MRI showed my AN was 1.5 cms so I was given the choice of radiation (GK) or surgery.  It was a tough decision, but I ultimately opted for surgery.

During surgery (6 weeks after my diagnostic MRI) my docs discovered my AN was actually 3+ cms.  They told me it was a good thing I chose surgery because if I had chosen GK they would have realized during the procedure that my AN was too large.

My surgery was retrosigmoid approach.  My outcome was excellent - no permanent side-effects except SSD (single-sided deafness) and only because my AN was wrapped around my hearing nerve and it had to be "sacrificed" during surgery. 

Jan

[Skishortstuff]

I had a 4 cm.  I woke up with facial paralysis and I'm five weeks post op and it's starting to come back. Start walking and then keep walking post surgery. I have no trouble speaking clearly. They somewhat cut into my neck muscles so I keep moving my neck- this helps recover my vestibular dizziness as well...

[Gloria Nailor]

My tumor was 3 cm x 3 cm and I had surgery.  I believe surgery is the recommended approach for larger tumors. You will surely be able to teach your daughter how to speak. I met 2 people yesterday who had the same size tumors and have no paralysis.  I had total paralysis but regained movement in the lower half of my face.  I am sorry you are going through this. Good luck to you.

[iz2014]

Thank you.

Surgery in about one or two months.

This worrying will all be over soon.

Just waiting for NF2 results now.

[v357139]

Best of luck and keep us posted

[cpchri1]

IZ we are praying for you.  Your best days are ahead of you too and as Jim said keeping a positive attitude and being educated with experienced doctors and your determination will get you through this difficult time.