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Author Topic: symptoms again  (Read 3769 times)

vb

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symptoms again
« on: October 19, 2014, 10:03:18 am »
Hello,

I have not posted for awhile. I had gammaknife radiation at Toronto Western Hospital. It went well and I had my 4th post MRI in June 2014. Tumor Stable. I started having symptoms again two weeks ago, they are getting worse and persisting. The dizziness, except this time, the whole room spins, fullness in the ear, pain etc. I have an appt. with Neuro. On Oct. 22/2014. Has anyone experienced this after this length of time? Could it be growing again. We all know that is a possibility. I'm so glad I can come into this forum anytime. No one else really gets it.

Thanks.
Vivian (Toronto)
2.2cm acoustic mengioma
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Diagnosed in 2009 1.9 cm
Acoustic Meningioma
Watch an wait for one year
Gammaknife radiation at 2.1 cm
Toronto Western Hospital

KeepSmiling

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Re: symptoms again
« Reply #1 on: February 12, 2015, 11:09:17 am »
Quote from: vb on October 19, 2014, 10:03:18 am
Hello,

I have not posted for awhile. I had gammaknife radiation at Toronto Western Hospital. It went well and I had my 4th post MRI in June 2014. Tumor Stable. I started having symptoms again two weeks ago, they are getting worse and persisting. The dizziness, except this time, the whole room spins, fullness in the ear, pain etc. I have an appt. with Neuro. On Oct. 22/2014. Has anyone experienced this after this length of time? Could it be growing again. We all know that is a possibility. I'm so glad I can come into this forum anytime. No one else really gets it.

Thanks.
Vivian (Toronto)
2.2cm acoustic mengioma

Vivian
I see that no one replied to your post, YET, so I decided I would, even though I am simply a spouse of an AN patient.

 I hope maybe a few may have sent you a personal message with encouragement. It might seem like you are alone, but you are not. We are here for you.

I hope you have made some progress since your post.   I encourage you to read as much as you can and to try to find the care you deserve.

I hope you will keep your spirits up. Stay optimistic and stay positive.  Warmest wishes to you.
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12/O6/2O12: 1.5 cm lesion.Proton Therapy-July/Aug, 2013 Massachusetts General Hospital. 2/23/2018 MRI: 1. Small .5 cm x(AP) x .8 cm (TV) x .8 cm (CC )left intracanicular acoustic schwannoma) Completely deaf in one ear. Occasional tinnitus. Zero side effects.

Mimispree

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Re: symptoms again
« Reply #2 on: February 12, 2015, 03:01:41 pm »
Hi Vivian:

I didn't have Gamma Knife, but I have read several posts where people experienced symptoms months after Gamma Knife.  Have you done a search on this forum yet? 

Just a thought.
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2.8cm Trigeminal Neuralgia tumor removed Translabyrinthine approach on July 31, 2014 at the University of Utah Health Center.
Dr. Clough Shelton and Dr. William Couldwell.
SSD; Right side facial paralysis; Poor right eye sight; Dizzy 24/7; Eyelid implant 02/215; Sense of humor intact.

KeepSmiling

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Re: symptoms again
« Reply #3 on: April 09, 2015, 02:49:06 pm »
How are you doing? Please know we care. Sending you a cyber hug.
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12/O6/2O12: 1.5 cm lesion.Proton Therapy-July/Aug, 2013 Massachusetts General Hospital. 2/23/2018 MRI: 1. Small .5 cm x(AP) x .8 cm (TV) x .8 cm (CC )left intracanicular acoustic schwannoma) Completely deaf in one ear. Occasional tinnitus. Zero side effects.
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