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Author Topic: Help with understanding the AN "language"  (Read 2497 times)

tugnutt

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Help with understanding the AN "language"
« on: August 31, 2016, 02:19:19 pm »
OK, I've lurked... and now I want to understand!  What is "SSD" and NF1 and 2?  retrosigmoid? I realize I should know, but I don't!

I had my surgery October 5, 2015; I was pretty ill - awful headache and nausea, because the tumor was pressing on my brainstem, compressing my brain ventricles, and I had fluid buildup.  It was done on an emergency basis, and I wasn't really very aware of what was going on. 

Thanks for your help!  Any explanations for what these (and other terms) mean would help me out. 
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PaulW

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Re: Help with understanding the AN "language"
« Reply #1 on: September 01, 2016, 03:16:22 am »
SSD Single Sided Deafness
NF2 Neurofibromatosis Type 2
Is a genetic defect that typically causes you to have an acoustic neuroma on both sides

https://en.m.wikipedia.org/wiki/Neurofibromatosis

Retrosigmoid a medical way of saying where they make the hole in your head to get to the tumour
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

tugnutt

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Re: Help with understanding the AN "language"
« Reply #2 on: September 01, 2016, 05:42:39 pm »
Thanks, PaulW!  SSD - single sided deafness.  Now wonder I saw it with most posts! 

I am SSD too! And thanks, retrosigmoid sounded a LOT more complicated...
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