Hemi facial spasms 2 yrs post GK

[robinb]

Hi Cathy-

So sorry to hear about your continued spasms. I found some research from when I was having them. I was told the same thing, they would be temporary and they were. I never discussed a surgery option for relief, but did research. I totally understand your frustration with not having Dr. L locally when you're having complications.

http://www.dystonia.org.uk/index.php/about-dystonia/types-of-dystonia/hemifacial-spasm

http://weillcornellbrainandspine.org/condition/hemifacial-spasm/diagnosing-and-treating-hemifacial-spasm
 The Weill Cornell has a link to upload your images and they will review.

Mayfield Clinic does too.

It may be time to seek another opinion, just for your own piece of mind with a local doctor.

Hope it gets better.

-Robin

[extropy]

hemi-facial spasms. they arrived today, 4 months after my GK due to a robust regrowth of my VS - retrosigmoid, 2014, sub-total resection (STR).

[SueLL]

If you have continued facial spasms that do not respond to gabapentin, I have had positive results with Tegretol.

[MG]

Hello Cathyroe,

I am not sure you are still on the forum. Please reply back if you are. I am going through the same thing as you and would like to talk to you.

Thanks so much,

 MG