Author Topic: Saw Doctor Today  (Read 7689 times)

Crazycat

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Saw Doctor Today
« on: November 09, 2006, 05:38:04 pm »
I had my six month MRI last Wednesday and saw the doctor today. No regrowth. In fact, the residual tumor left behind appears to have shrunck.
Doesn't mean I'm out of the woods yet. I'll need MRIs the rest of my life. He did tell me that I still hold the record at Mass General for tumor size.
He said there was a guy that had one recently almost as big as mine but with many more complications than I had. Next MRI in one year.
Here's a look at my scans for the newbies....

Paul





5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.

Desilu

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Re: Saw Doctor Today
« Reply #1 on: November 09, 2006, 05:53:06 pm »
Hi Paul,

I think congratulations are in order! No regrowth, that is wonderful news. Ann
HEI July 26, 2005
5mm X 8mm Left AN
Middle Fossa
Dr. Brackmann & Dr. Hitselberger

krbonner

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Re: Saw Doctor Today
« Reply #2 on: November 09, 2006, 06:24:46 pm »
Woo-hoo!  Good news, Paul!

Katie
diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

Palace

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Re: Saw Doctor Today
« Reply #3 on: November 09, 2006, 06:40:42 pm »
Hey There Crazy Cat,


I'm thrilled for you.  You more than paid your dues.  That is terrific.  It made my day and I mean that.  Oh, can't you forward that picture of yourself that you painted.........not as an attachment but, on the email just like you did on the forum only send it through the forum forwarded to me?  I still think others might like to see it as a logo.  It is just an idea but, I would like to see the efforts and yoru tallent.

Again, good for you.  You must be happy today.  Go celebrate.....



Sincerely,



Palace
22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness

BusyBonnie

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Re: Saw Doctor Today
« Reply #4 on: November 09, 2006, 06:52:37 pm »
Awesome news! I can't believ the size of that thing! I'm so happy for you and hope you are celebrating!

Lana
Mother and wife.
2006 11mm acoustic neuroma.
GK Dec. 27th 2006 at SD Gamma Knife Center.
June 2007 MRI - No signs of necrosis.
April 9th 2013 - 13mm
Will be scheduling radiosurgery again

ellenvig

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Re: Saw Doctor Today
« Reply #5 on: November 09, 2006, 08:32:02 pm »
Congratulations!!!

Ellen
2.3cm AN diagnosed 6/13/06.
Gamma Knife 9/22/06.
Dr. Greorg Noren, Providence RI.
http://savyon.com/ellen/AN.htm

ppearl214

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Re: Saw Doctor Today
« Reply #6 on: November 09, 2006, 09:29:06 pm »
...and boy, are we going to celebrate at the brunch! YAY PAUL! Congrats! :)
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Gennysmom

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Re: Saw Doctor Today
« Reply #7 on: November 09, 2006, 09:51:00 pm »
Way to go Paul!!!!!!!  You've really been an inspiration!!!!!!!!! 
3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

Battyp

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Re: Saw Doctor Today
« Reply #8 on: November 09, 2006, 10:15:24 pm »
Yeah Paul!  And you can run too...my son still won't let me run outside where anyone can see me  LOL


Patti UT

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Re: Saw Doctor Today
« Reply #9 on: November 09, 2006, 10:50:43 pm »
Paul,
 I am elated that there has been no regrowth. I'm so glad that enormous thing is outa yer wonky honky tonky heaad.
Heres to keeping it outa there.

Patti UT
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

stein78

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Re: Saw Doctor Today
« Reply #10 on: November 10, 2006, 09:33:42 am »
Congrats Paul!  Great news!
29 years old
2.5cm AN - left side
Removed May 10th, 2005
Dr. John Leonetti & Dr. Douglas Anderson
Loyola University Medical Center
Chicago, IL

comfortzone

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Re: Saw Doctor Today
« Reply #11 on: November 10, 2006, 12:28:32 pm »
WOW that's incredible! Congratulations on your good news!! It must feel great. Those scans are amazing...
8 mm left side AN Retrosigmoid surgery with Dr Akagami at Vancouver General Hospital April 3, 2014 SSD

nannettesea

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Re: Saw Doctor Today
« Reply #12 on: November 10, 2006, 11:25:53 pm »
YEAAAA, Paul!  I just cannot believe the size of that thing, every time I see it.  You are one G****ED fortunate guy!
We're so glad you're here!
Nan
1.7cm x 1.4cm x .8cm, right ear
Trans-lab approach
Dr. Jay Rubinstein, U of WA
8/29/05

Crazycat

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Re: Saw Doctor Today
« Reply #13 on: November 11, 2006, 02:23:59 am »
Yeah......I know. I really came close. I was messed up pretty bad. It's a miracle that I came out of it with as few side effects as I did. Those doctors at Mass General and Mass Eye & Ear Infirmiry- Barker and Mckenna - are top notch. I'm quite sure I wouldn't have done as well without them.

   You know, when people say, " you're lucky" or, "It could have been worse", they're so right. I know it seems very glib and trite, but it's also very true at the same time. If ANs were cancerous, most of us wouldn't even be here right now. Those of us who were left would be on their way out. It would only be a matter of time - and not long at that.

   I was watching the movie "Gettysburg" recently, after having recently visited the battlefield last month in Pennsylvania. One of the leading actors in the film, Richard Jordan, put in a great performance as a Confederate officer that is mortally wounded at the end of the battle. As I watched the credits roll by, I was amazed to see that the film had been dedicated to him, indicating that he had died before the film was completely finished. I did a little searching on the net and found that he indeed had died during the production - considered by many to have been his greatest performance on film - at 55 of a brain tumor. I was stunned. That meant his performance, as great as it turned out to be , was given under the duress of being mortally ill. I sometimes wonder if the great emotion he summoned up during his scenes was born out of the consciousness of what he was enduring in real life.
    George Harrison of "Beatle" fame died from it as well. In fact, I learned recently of a gifted, young neurosurgeon in his forties that practiced at Lowell General Hospital in Massachusetts who died from brain cancer. I heard that he was married and the father of 4 young boys. I was told this by an off-duty O.R. nurse that I met who works at Lowell General. After I told her about what I had gone through she told me about him.  When this stuff is cancerous it very rarely, if ever, takes prisoners. Evidently, NOTHING is sacred.

In this sense, we truly are fortunate.

     Paul
« Last Edit: November 11, 2006, 10:32:03 am by Crazycat »
5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.

Obita

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Re: Saw Doctor Today
« Reply #14 on: November 11, 2006, 05:12:51 am »
Well said Paul and congrats on the great news.

The evening my ENT called with the "news", he made me repeat the word benign.  He said to hold onto that word as I digest and research my options.  We truly are blessed that they are a slow growing, benign tumor.

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines