Author Topic: Time for us to cheer up...... lord knows we need it!  (Read 9716 times)

ppearl214

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Time for us to cheer up...... lord knows we need it!
« on: November 16, 2006, 12:34:16 pm »
Ok, folks... for those I speak to here and behind the scenes... it sure seems like many are having a tough 2006, myself included....we have physical, emotional, financial, work-related, relationship whoas and I have to admit, besides my cheeky bloke spouse, one truly good thing has come out of 2006... and that is you all.  All of your love and support and bad jokes and huggles and shoulders and good ears, etc. have been invaluable to me.

So, for those of you in the beginning stages of your AN journey, for those going through recent treatments... for those of us posties that remain here to help each other along...for those that have other issues going on that seems to drain you of every ounce of energy you have... for family issues that just seem never ending... for those that just need to take a deep breath.....since it's Thanksgiving (in the USA) next week and we DO have a lot to be thankful for....  it's time we take back what is rightfully ours..... our lives. Sing it with me now! 

(Bon Jovi's "It's my life!" )



This ain't a song for the broken-hearted
No silent prayer for the faith-departed
I ain't gonna be just a face in the crowd
You're gonna hear my voice
When I shout it out loud

Chorus:
It's my life
It's now or never
I ain't gonna live forever
I just want to live while I'm alive
(It's my life)
My heart is like an open highway
Like Frankie said
I did it my way
I just wanna live while I'm alive
It's my life

This is for the ones who stood their ground
For Tommy and Gina who never backed down
Tomorrow's getting harder make no mistake
Luck ain't even lucky
Got to make your own breaks

Chorus:
It's my life
And it's now or never
I ain't gonna live forever
I just want to live while I'm alive
(It's my life)
My heart is like an open highway
« Last Edit: November 16, 2006, 12:35:47 pm by ppearl214 »
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

nancyann

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #1 on: November 16, 2006, 12:43:35 pm »
Thanks for the 'UP BEAT'  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

krbonner

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #2 on: November 16, 2006, 12:51:27 pm »
Thank you, Phyl!  Goodness knows it's sometimes hard to remember how much there is to be thankful for!!

See ya Sunday!!   :-*

Katie
diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

matti

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #3 on: November 16, 2006, 12:54:14 pm »
I can't begin to put into words how fortunate and blessed I am to have found all of you. The support, prayers, laughter and love I find here means the world to me, Thank you!!!!!

Phyl, I'm singing with you and thank you for the beautiful post.

hugs,
Cheryl

3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Gennysmom

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #4 on: November 16, 2006, 01:49:34 pm »
Ditto...and I'll share my mantra for this AN journey (I know, I know, I claim to be a headbanger, and I'm giving you pop lyrics):

I am unwritten, can't read my mind, I'm undefined
I'm just beginning, the pen's in my hand, ending unplanned

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your inhibitions
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins
The rest is still unwritten

Oh, oh, oh

I break tradition, sometimes my tries, are outside the lines
We've been conditioned to not make mistakes, but I can't live that way

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your inhibitions
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins

Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins
The rest is still unwritten

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your inhibitions
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins

Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins
The rest is still unwritten
The rest is still unwritten
The rest is still unwritten

3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

ppearl214

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #5 on: November 16, 2006, 02:51:50 pm »
don't be headbanging just yet, Gennysmom... you just got your head fixed! :)

Hang tough folks!!!!!!!!!!!!!  We're gonna get through all this crap! I just know it... I just feel it!



btw, Cheryl, Beanie sends her virtual boyfriend a hearty woof-arf-arf-woof-heh-arf! :)  She said he'd know what it means! :)


xoxoxo and all that good stuff!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Patti UT

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #6 on: November 16, 2006, 03:15:00 pm »
Thanks all for the great song lyrics and up lift. I am Thankful this Thanksgiving for so many things, but so very Thankful for the support  on this forum and the behind the scene fun, joking and support. I never thought I'd have such a conncetion with  people I've never met face to face. (Is this how on line affairs work?? LOL)

Ponder this......................(no not a song, I can't carry a tune, 1/2 deaf you know?  LOL)

*If you woke up this morning with more health than illness....you are more blessed than the million who will not survive this week.
*If you have never experienced the danger of battle, the loneliness of imprisonment, the agony of torture, or the pangs of starvation...you are ahead of 500 million people in the world.
*If you can attend a church meeting without fear of harassment, arrest, torture, or death... you are more blessed than 3 billion people in the world
*If you have food in the refridgerator, clothes on your back,a roof overhead, and a place to sleep... you are richer than 75% of this world.
*If you have money in the bank, in your wallet, and spare change in a dish someplace...you are among the top 8% of the worlds wealthy.
*If you hold up your head with a smile on your face, and are truly thankful... you are belssed because the majority can, but most do not.
*If you can hold someone's hand, hug them, or even tough them on the shoulder...you are blessed because you can offer healing touch.
*If you can read this message, you just received a double blessing in that someone was thinking of you to send it to you, and furthermore, you are more blessed than over 2 billion people in the world that cannot read at all.

Have a wonderful day,

Huggles
Patti UT
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Gennysmom

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #7 on: November 16, 2006, 03:25:52 pm »
Good one Patti!  Hey, we're always up for a little lovin' on line, affair or not!  :-* :-* :-* :-*
3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

nancyann

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #8 on: November 16, 2006, 05:30:04 pm »
Hi PattI: always good to keep life in perspective

I enjoyed the reading.   You have a wonderful day too girlfriend.
 

Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

lmurray69

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #9 on: November 16, 2006, 09:18:48 pm »
 I have to tell you all how blessed that i am . The DR.S told me that the first 2 days would be the worst.. I slept for 2 days , no pain, they did say that i got sick after surgery  in the Icu...  And on the 3rd day they took me to my own room . between my husband and the nurses I walked the whole length of the halls back and forth ,, The DRS was in awl they couldnt believe that I was up and about the 5th day I was released to the seton hall.. I came home the 8th day.. traveled back to Missouri... I have been home 2 days,,I am tired but I am alive and still kicken,,,I have a small twitch in the left eye and dry eyes.  dizzy when i am in the sun...they sun effects my eyes which in turn controls my eyes ...I love each and everyone of you... thanks again....ppearl you are the best girlll good luck on your cruise Linda
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Brendalu

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #10 on: November 17, 2006, 05:55:38 am »
We are a blessed bunch.............and some of us very talented.   Happy Thanksgiving and Hugs to all.
BrendaO
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Obita

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #11 on: November 17, 2006, 06:06:43 am »
Well said everyone.  Happy Thanksgiving to all. 

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

ppearl214

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #12 on: November 17, 2006, 07:33:22 am »
It's a new fresh day folks (well, at least for most of us at the time of this writing... Laz is enjoying his Friday eve already!)

New day... fresh day.... weather may not be cooperating (neither is my hair), but it's another day towards continued wellness for all... and for those of you not have a particularly good day today......

HUGGLES!!!!!!!!!!!!!![/size][/color][/b]


It's my Life... and I'm taking it back!!!!!!!!!!!

xo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Captain Deb

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #13 on: November 17, 2006, 12:13:19 pm »
Great thread you wenches!

I'm still grieving the loss of my beloved Ursa after almost a month. I finally packed up all the dog bedding, food and toys and took down the shrine. This is the first time in 25 years that I've been dog-less.
I kept a house on St Croix and when I wanted to go off sailing I dropped my "kids" off at Daddy's vet clinic. Dr Love is gone all the time and I've been feeling very sad and majorly anxious, especially about the holidays. I have mixed feelings about having the family over for Thanksgiving--the noise level is really high with a 1 and 3 yr old and our house is quite small and not kid-resistant at all. But, Hey, I have a house and a family right?

You guys are the best and always help me reset my compass when it gets out of whack and starts pointing too much at my "predicament." We are truly blessed  to  be still able to still wobbly walk, talk, see, and breathe and somewhat hear, after having a brain tumor.

Thanks,
Huggles back atcha,
Capt Deb 8)
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
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Larry

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Re: Time for us to cheer up...... lord knows we need it!
« Reply #14 on: November 18, 2006, 07:04:22 am »
ditto from down under - you guys rock


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
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http://www.frappr.com/laz