Newbie waiting on diagnosis

[Tedica]

I'm currently being tested for AN. According to my symptoms, headaches, fullness in ear, tingling sensation in face,lots of dizziness,  etc, my primary care physician is suspicious.  I had head CT without contrast yesterday that is negative.  Should I proceed with MRI?  also, do any of you have headaches in back of head or temple area?  I mostly have strange feeling in my head that is difficult to explain.  Feels like I'm in a fog at times.  Also having poor vision at times. I've been told these are related to sinus/allergy issues but CT of head states sinuses are clear.  Just really frustrated...

[Director]

Hi Tedica,
  Standard test for diagnosis is an MRI with contrast, so it sounds like that would be your next step. As far as your head, many AN patients describe something they call 'wonky head", so it would not be uncommon. If you are diagnosed, please contact us at ANA and we will send you a free patient kit with lots of information.
Best, Allison
director@anausa.org

[Kathleen_Mc]

Hi Tedica:
You need to have an MRI with contrast, CT with or without contrast will not be definite enough ( depending on size, my initial tumor was big enough to be found on CT but it as very big).
Pre Diagnoses I had severe headaches but I can't remember what area of the head hurt, that and inability to sleep were ongoing for a few years before diagnoses then came the facial numbness. I did not realize I was loosing my hearing but was down to 50% loss in the one ear by time of Diagnoses.
Welcome to the club nobody wants to belong to, you will find a lot of information and support here.
Take care
Kathleen

[Patti]

yes, i got headaches in both the back of my head and temple area.  they improved significantly after surgery, but i still get them at times.  Go for the MRI with contrast.  Good luck!