Just found out yesterday I have an AN. I don’t really have a “team” yet. Not even an ENT as I’ve had to gather all the evidence myself so far because the soonest appointment I could get with an ENT was May. I knew it couldn’t wait. Honestly, I was so scared before the MRI because my GP was being very dismissive as I was having to educate him on what the audiologist report meant. He’s a nurse practitioner, bless him. Being right about a brain tumor sounds dumb to be proud of, but by being so, I’m not as upset emotionally today. So, I live in Hawaii and do not want surgery here as my experience with medical support has not been outstanding thus far. My biggest goal is facial nerve preservation as I work with children and I will admit I just don’t want my face to change. Could anyone share their experience with UC-SD? Thank you!!
