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Author Topic: AN Awareness at Symposium  (Read 6705 times)

Captain Deb

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AN Awareness at Symposium
« on: November 29, 2006, 11:37:57 am »
I certainly hope that the Philly Symposium will have a program on raising awareness for AN. If not, maybe we patients may be able to start shaking things up a bit. We need to get Mark Ruffalo involved. We need to raise hell with insurance companies who regard MRI's as a last ditch effort. That misdiagnosis thread has got my dander up!!! AAAAAAAAARRRRRRRRRRRRRRRR!!!!

Capt Deb 8)
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Pembo

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Re: AN Awareness at Symposium
« Reply #1 on: November 29, 2006, 12:34:14 pm »
I agree with you!!!!
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nancyann

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Re: AN Awareness at Symposium
« Reply #2 on: November 29, 2006, 03:09:12 pm »
hi captain deb

when is the philladelphia symposium, how do i find out about it?

thanks, nancy
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Captain Deb

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Re: AN Awareness at Symposium
« Reply #3 on: November 29, 2006, 03:26:28 pm »
Nancy-go to the ANA website by clicking on their logo at the very top of the screen. The bulletin with all the info should be out soon as well.
Capt Deb 8)
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
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Obita

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Re: AN Awareness at Symposium
« Reply #4 on: November 29, 2006, 04:16:40 pm »
I have read quite a few Mark Ruffalo interviews but I think this is the best:

http://nymag.com/nymetro/movies/features/n_8518/index.html

Now, if we just knew how to find him.......
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Kathy - Age 54
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nancyann

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Re: AN Awareness at Symposium
« Reply #5 on: November 29, 2006, 04:39:05 pm »
thanks, Capt.     

I never knew that was there. (but I'm learning computers, a little at a time). 

ps   i'll make him an offer he can't refuse (being a paesan & all  lol ).

« Last Edit: November 29, 2006, 04:47:27 pm by nancyann »
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Gennysmom

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Re: AN Awareness at Symposium
« Reply #6 on: November 29, 2006, 06:09:18 pm »
Good article Kathy!  With six degrees of separation out there somebody has to know somebody!!!!  He obviously gets it....even about the cognitive stuff!
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lmurray69

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Re: AN Awareness at Symposium
« Reply #7 on: November 29, 2006, 06:29:01 pm »
eye eye caption we all agree...
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Obita

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Re: AN Awareness at Symposium
« Reply #8 on: November 29, 2006, 06:33:04 pm »
Yep, thats why I liked this interview.....and his Dr. was rather honest with him.  

How about this:  

The next one to have surgery at House gets to go find him in the Hollywood Hills.  After all, don't you need to hang around there for about 10 days?  Might as well go sightseeing and stalking.  ::)
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Battyp

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Re: AN Awareness at Symposium
« Reply #9 on: November 30, 2006, 08:51:33 am »
stalking?  Did someone mention stalking?  And it's a man too...I'm on it mcgruff  LOL hopefully he doesn't become wise and run or I'll never catch him  LOL
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Captain Deb

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Re: AN Awareness at Symposium
« Reply #10 on: November 30, 2006, 11:48:17 am »
Batty dear--you defintely ought to find a career as a researcher or grant-writer of some kind--you would rock at it!!! My favorite rat-terrrier!!!
Capt Deb 8)
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

ppearl214

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Re: AN Awareness at Symposium
« Reply #11 on: November 30, 2006, 12:59:22 pm »
Dang it! It just hit me!  *ow!*

My nephew works for CNN!  HELLO!!!!!!!!!!!!!!!!!!!!  Did someone mention Dr. Sanja Gupta in a thread here?  My nephew got me a personalized autograph copy of Anderson Cooper's book and my nephew does PR for CNN in NY.

someone fill me in as to what is needed for AN awareness and Dr. Gupta!

xoxoxoxoxoxoxox
Phyl
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