Vaccine side effects?? Hearing loss???

[Lee Falk]

Hi,
I'm just about 5 years post op my AN. SSD in right ear. I'm terrified to get the vaccine because I read about rare cases of loss of hearing and increased tinnitus. Has anyone out there gotten the vaccine and had these issues? have they resolved? I want the vaccine! But I don't want to lose hearing in my only good ear..... Advice???

[bfoley]

SSD due to fast growing AN - pre gamma knife.  Had both doses of Pfizer and had zero side effects other than slightly sore arm.  Some people state blood type may be a factor in reactions?  I am B +.  Good luck!

[james e]

Have had no impact from my 2 injections. In fact, I had Covid last year in October and ran a low fever for 1 day, and didn’t know I had it until my last blood donation said I have Covid antibodies. This was before I had my vaccine. Lost my sense of smell and taste and some days I can smell a little however most days I cannot.

[Greece Lover]

I have slight hearing loss in AN side.  I had both doses of Moderna and it had no impact on any of my tinnitus or hearing.

[chloes mema]

I'm SSD on my AN side with tinnitus, have hearing loss in my other ear and I'm 9 years out from CK with that said...
After first vaccine shot 48 hours later my tinnitus, which was only in one ear, got so bad I was crying and it started up in my other ear.
I'm SSD on my AN side and have hearing loss on my "good" side so after much research I decided NOT to get the second shot or any further vaccines.  I will not put myself at risk to becoming totally deaf!
The tinnitus has calmed down some but it's still worse than it ever was.
I've been to my ENT who did a hearing test, said my hearing had not changed thank heaven; however, a couple of weeks later I started having terrible vestibular problems.  The dizziness and balance problems are almost as bad as they were right after my CK treatment.  I went to my neurotologist who is sending me for PT for the vestibular problems.
Here's the interesting part, while being checked in at the neurotologist office the nurse and I had an interesting conversation.  She said they've seen numerous patients with the same complaints as mine and actually have had two that lost their hearing!   
I understand that people want to move beyond this pandemic but if I had known of these side effects I never would have gotten the vaccine. 
It's a personal choice, good luck.

[tsaff88]

I had the Moderna vaccine.  No increase in tinnitus or any other side effects other than a sore arm for a couple of days. 

[mwatto]

Try melatonin at night. This really helped my tinnitus. I take Circadin melatonin (slow release 2mg) and when I get bad nerve pain or tinnitus I add in 1 mg Valium. I only take the Valium every few weeks if having a flare and only at night. Another useful product is PEA (palmitoylethanomide) which is natural. I am also trialing tissue salts at night (Scheussler) might be a coincidence but the mag phos and kali phos seem to help. Looking into L-theanine.

[chloes mema]

Thank you for the suggestions for helping the tinnitus, will give them a try.  Something has to help.  Going to new neurotologist tomorrow regarding the tinnitus.

[mwatto]

Melatonin dampened my tinnitus to nothing.

[mwatto]

How are you doing now? I am a bit worried re waiting to have Pfizer. Unsure. Thinking I might wait longer- I live in Perth Australia and we have a shortage but no COVID here anyway. I am two and a half years past my Cyberknife. Has your hearing and balance stabilised now? Last thing I need - mine ipsilateral to the trigeminal and I have earache a lot. No other symptoms.

[mwatto]

Hi tinnitus is a common side effect of Pfizer and it is probably transient. I belong to a forum and its common. I had CK three years ago and yeah I had a lot of side effects after one jab including tinnitus. In fact I had a range of symptoms for about two years. And a year after I got Covid I still get random symptoms.

[3tigerz]

One year post surgery with sub removal. I have had both Moderna vaccinations and two boosters. I had no side effects.

[donjehle]

Thank you for posting your experience, 3tigerz.

[Bp15]

Again, repost what I did in another 2 topics which also talk about this…

I’ve developed some issues, not sure if this is related to vaccine (Pfizer), but let me tell you what I have.  AN left side, removal of the inner ear so no hearing on that ear (Not sure if this is call trans-lab or something else…, i lost track of all the terminologies after 15 years), and yes, the surgery was done 15 years ago.  After 6 months, I had CFS leak into my inner ear.  My ENT said that she can see the fluid behind the ear-drum.  Took me about 2 years to get used to the imbalances and started to live normally again w/o hearing and some loss of balance.  Took me at least 5 years to be able to sleep on that side, so just wait a bit longer if you still have issue sleeping on that side. 

Recently, about 3 months ago, I started to have the itch inside the AN ear…really itchy and I had to press hard a the bottom of the earlobe to relieve some itch.  Sometimes I have to use the cotton swab to scratch the inner ear canal too (But NOT recommended by my ENT).  Then about a month or so ago, I started to have twitches inside the AN ear.  Then just last week, the itchness mostly gone (only sometimes now), but the twitches seem to happen more frequently and so is the tinnitus. Tinnitus is very loud now and seems to amplified with noise/sound from the good ear…(i closed off the good ear and the AN side does not amplify the tinnitus so I assume that is caused by sound from the good ear).  I have some mild headache on top of my eyebrows (both sides).  Also experiencing some facial tenseness in the AN side.  I’ve been very worried that the tumor has come back.  I’ve always had tinnitus since the start of AN and before and after the surgery but not this loud and it sounds like find bubbling sound instead of the normal high/medium pitch sound.  All the symptoms I’m having now seems to either indicate that the tumor has return on the facial nerve or something (like vaccine) has disturbed the area.

However, when I told my brother, he called me and said that his wife (She has no AN issue)…also got the second Pfizer booster shot 2 weeks ago (mine was 3 weeks ago), and she also is experiencing itches on one year but both of her ears are having issue with tinnitus and muffled.  Her friend also has same issue.  My older brother also has same issue with his ear after getting the Pfizer vaccine (his is the first).  I’m starting to think that my itchy issue starting from getting the first booster and now with the second booster shot, it is getting worse???  All I am saying is this might be the pattern (I hope, since I don’t want to get the tumor again!).  My older brother’s issue seems to subside after few weeks.  My sister in law issue seems to get better as well after 3-4 weeks, but she only back to 60% normalcy in terms of hearing.

Did you also see the news about some Vaccine researcher also experiencing the same issue?  He is paid to do research for one of these vaccine companies and he is having this issue too and he is asking the govement to look into this unreported issue.

At any rate, I’m trying to see if i can make appointment to see doctor Slattery or Dr. Lokovic…I know they probably work together on the AN surgery and one is a Otolaryngology and dr. Lokovic is a neurologist.  Which doctor does one need to see first or does not matter?

Thanks and hope my information i have hear could help someone.

[marybodah]

Hello everyone,

My experience with Covid 19 vaccines and exacerbated tinnitus:

Had all my Moderna (Mrna) orig shots and first booster and only side effect was slight itching for couple wks ... however after my second booster, within a day, I developed the worse tinnitus I ever had! So loud I could barely sleep---thousand loud bees buzzing in my head, never mind the distressing rhythmic chirps and bongs and brain zaps--you name it, I felt it and heard it!  The opinion of a couple of docs was that it was an over-inflammatory response from the vaccine and hopefully would subside. It took about 8 months for my tinnitus to go back to baseline.

I did lots of research and contacted a well-reknown infectious-disease expert who coincidentally got tinnitus after his shot who was kind enough to actually call me. He suggested (my decision of course) I wait until the Novavax vaccine was approved as it is made similarly to the flu shots (older technology)  ---He told me you can get tinnitus from Covid and also some people get tinnitus from Flu shots. I never had any  problem with any other shots before, so I went a year and a half masking, taking all precautions and finally in DEc 23 of 2023 had the Novavax ...and NO exacerbation of tinnitus! Yeah!

To end my story, after 4 years, on March 22, 2024 I tested at home positive for Covid 19. Luckily mild case--no fever or headache, only runny nose and slight sore throat and some coughing. Worse part was extreme fatigue for 2 1/2 wks... then I was fine.

I will be taking the new Novavax shot when it is available in September (?).

I hope this info is helpful. And FYI--This side effect of tinnitus has been reported as an adverse side effect by about 15,000 people a couple years ago so the gov't knows about it.  But it is considered so rare it may be unlikely research dollars will go into figuring out what in the shot cases it.

Regards,

Mary L Bodah