Update - I had GK on 8/27/24 at UPMC. The whole process couldn't have gone smoother, and I was very pleased with the care I received. I am now about five months out, and was advised that there can be an increase in inflammation as the tumor cells begin to die off around 4-6 months. I have noticed being a bit more off balance on some days and recently developed some numbness and taste distortion on the right half of my tongue as well as a few small fasciculations around my right eye and lip. I was given a prescription for a steroid in case of severe vertigo or uncomfortable symptoms but have not needed it so far. I have follow-up MRI scheduled in about a month, so we shall see.
Dan - As for the golf - a family friend is a neurotologist, and I asked him if he recommended vestibular therapy for my balance issues. I am very active, and he suggested I just keep doing the things I enjoy: walking every day, playing lots of golf and continuing pilates classes, so that is what I have done. I think of it as my therapy. I never know who is going to show up on the tee box - some days are worse than others, but I have fun and no one seems to care. Hoping I can become more consistent as everything settles down but after seeing what some of the AN warriors here have been through, I feel very fortunate!
