Second radiosurgery?

[notaclone13]

Has anyone had a second radiosurgery treatment because the first session did not work? I am 3.5 years post radiosurgery (3 sessions of Linac, 21 gy total) and I’m still experiencing significant growth and facial spasms. At my age, early 70s) surgical removal is not a good option. I know all too well that with more radiation, the risk of malignancy rises. However, to me the risks associated with surgical complications are more daunting.

[mwatto]

My specialist told me that if I get regrowth they will zap the non responding aspects of the AN. I am 63 years old.On the other hand I saw a neurosurgeon this year and he told me that he would easily be able to remove mine even though radiated if regrowth occurs (I saw him re I was getting this stabbing nerve pain in ear). As you are still within the 5 years Chang mentions on his video re response- it might be worth asking him? Just wondering if this is pseudoprogression.

[DodgeAU]

Hi, I had GK treatment 2.5 years ago and the treating doctors told me that in case there will be re-growth in the future, they will be able to perform another GK treatment. That was the re-assurance from them during the procedure.

[DanFouratt]

I had CK and the doctor said I could do it again if needed, I am 63. 

Dan

[notaclone13]

Good to know,where did you have CK?

[UkulelesAreAwesome]

I had GK 2 years ago. I was told if it fails my only option is surgery. For some reason they felt if it fails once, it'll fail twice. And failure is one thing I excel at.

[DanFouratt]

I had it done at UNC,

To be frank I would go to Duke next time.  I believe UNC was very capable but I simply did not like the process and they way they treated a patient. My experiences at Duke for my heart were far better and they are very capable.

[Derby]

with more radiation, the risk of malignancy rises

The time to malignant transformation is measured in decades. For someone in their 70s, this isn't a consideration. It's a much safer option than surgery.