Author Topic: Vestibular side effects post radiation  (Read 1343 times)

mwatto

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Vestibular side effects post radiation
« on: August 09, 2024, 11:08:52 pm »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

JGinLA

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Re: Vestibular side effects post radiation
« Reply #1 on: August 12, 2024, 10:20:30 pm »
Thanks for posting, the more information I gather the more confused I get about whether having SRS makes sense or not. This article scares me.
4mm AN on left side
Diagnosed Sept 2010
Watching and Waiting

RGG

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Re: Vestibular side effects post radiation
« Reply #2 on: August 16, 2024, 07:54:32 pm »
I would think it would depend on whether your vestibular nerve is still functional before radiation.  If it's not, or has been removed already during surgery, then there shouldn't to be any vestibular side effects. 
Jan 2017 - Retrosigmoid surgery for 3x2x3 cm tumor, Dr. Akagami, Vancouver General Hospital
Sep 2020 - 6mm regrowth detected
Mar 2024 - regrowth to 1.4 x 0.8 cm
Jun 2024 - GK at Toronto Western Hospital

mwatto

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Re: Vestibular side effects post radiation
« Reply #3 on: August 17, 2024, 02:29:50 am »
I have never had balance issues (not that I am aware of )  before or after CK. So I guess my nerve functional. I can stand on one leg either side for around 4/5 mins. Am 63. I power walk daily at speed.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

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Re: Vestibular side effects post radiation
« Reply #4 on: August 17, 2024, 05:16:57 pm »
Like Michele I have never had a balance issue.  I have had a few wobbly moments and the day of CK I had a moment when I stood up and decided to sit back down. My wobbly moments could relate to my heart issues which were address this spring. The heart doc asked about balance issues and I said if I had any how would you know if they were VS or OHS related.

I do not know enough about your situation to say if SRS makes sense.  When I went through my decision journey I put together a decision matrix to help me evaluate my options of surgery or radiation. .  If you want a copy please email me at Dan4att@gmail.com and I will send it.

Good luck on your journey,

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm