GK on 9/17 - extreme vertigo in 48 hrs

[GMDizzyndeaf2]

Hello,
I had gamma knife on 9/17/24 and was fine until 48 hours later. Vertigo was so bad that I was vomiting. Couldn’t open my eyes without room spinning and nausea. I was prescribed Ondansetron (4mg)3 doses for nausea and motion sickness chewable tablets. That stopped the vomiting but not the vertigo whenever I moved my head. Then my neurosurgeon called to check and wanted to try a steroid taper. I started 1 tablet (2mg) Dexamethasone 3 times a day on the afternoon of 9/21. The extreme vertigo has lightened unless I try focusing a distance.
My question is has anyone had this reaction and recovered from vertigo after the steroid taper or PT?
Thank you for positive feedback.


MRI - 7/19/2024
AN - 10mm in length by 4-5mm by 4-5mm
GM - 9/17/2024

[UkulelesAreAwesome]

I had the same situation. I had GK on a Thursday 8/11/22. I rested that day and the next day. The following day I thought I was doing great so I did a bit of laundry. I ended up sitting on the basement floor until the dizziness subsided. I made it upstairs slowly and spent the evening vomiting. It has not happened again to the point of vomiting. I take Dramamine if the dizziness and nausea are bad. I did not contact the doctor at the time so I was not prescribed anything.

[UkulelesAreAwesome]

I forgot to add I struggled a bit with dizziness for a couple weeks and it was hard to look at a computer screen or go for a walk. Vestibular rehab helps a lot. Also be careful not to turn your head too quickly.

[GMDizzyndeaf2]

Yes, turning my head quickly is not fun. I have to learn the new me.
I will ask about vestibular rehab, thank you!

[mwatto]

Chat to your specialist about 1 mg diazepam for when you get these attacks. Its supposed to help.  When I had CK I also took (and still do) melatonin and PEA which helped me a lot with neuroinflammation

[GMDizzyndeaf2]

I will ask. Thanks for sharing the helpful information.

Congratulations on your results, shrinking AN and 85% hearing.
My left ear feels full and it seems like I lost all hearing on that AN side.

[mwatto]

Unfortunately, while I have pretty good hearing- I have battled for 7 years (two before treatment) with really bad stabbing, stinging pain deep in that ear. No one knows why. It wakes me up at night and nothing really helps the pain. I have it now as am typing this. Its not typical it seems on this forum but its in the AN ear. I even saw a neurosurgeon and he reviewed all my MRI scans and like my CK specialist said its prob not the AN. The trigeminal nerve looks fine. I sometimes also get in that side eye and that side throat. Not on medication so I take CBD some days which helps. I have to have MRIs for rest of life I was told as no radiation treatment is a cure. I will eventually also lose hearing.

[GMDizzyndeaf2]

 The fullness, stinging pain and deafness occurred after Gamma Knife for me. Beforehand, I only had slight high frequency hearing loss and tinnitus in AN side(left).
I am hoping that it’s caused by inflammation andby the end of my steroid taper it will fade away. Trying to think positively!
Thanks for your update.

[stevehernes]

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[GMDizzyndeaf2]

UPDATE:
The vertigo is gone… my left ear still feels full with no hearing in it at all and I am lightheaded when  getting up or turning my head/body quickly. I am hoping with time and starting vestibular therapy this week there will be improvement but afraid this may be my new life.
Thanks for asking!

[DanFouratt]

Sorry to hear you are still struggling.  I had fullness in the ear and reduced to no hearing for at most two weeks.  I have returned to poor hearing and no fullness. Tinnitus is simple a constant in my life. Hope things improve.