Hello Everyone,
I am a newbee. I have been diagnosed with a 3mm Intravestibular Schwannoma and am told it is in the Vestibule only (the bony part of my left ear) The Neurotologist I saw did not impress me. He was a little dismissive, said I was lucky to have mine in this location (I don't feel lucky at all). He is adamant that no one will do surgery on me at this point, even though I did not ask for surgery. He says surgery would result in complete loss of hearing and I would have lasting balance issues after. He wants to wait and see. I am 64 years young, have hearing loss, balance issues, dizziness, a constant headache, ear pain, ear cracking sounds and terrible pulsatile tinnitus. I have an appointment with another Neurotologist/Otologist at the end of October at a facility in Raleigh NC. that my Neurologist referred me to. Does anyone know of this type of tumor? I can find very little information about it. I am concerned that waiting too long would result in me aging out of a time of my life when I am still young enough for better outcomes but on the other hand I hear the Neurotolgist say I will completely lose my hearing and some balance forever! I am healthy, eat a very healthy diet, walk 3-4 miles almost every day. Play pickleball and babysit my 2-1/2 year old granddaughter 3-4 days a week. I'm not ready for all of these issues which I could have with or without surgery (some I already have) Need some advice. Thanks for listening to me vent....
