Author Topic: Two months post Gamma Knife/Facial Spasms with strange feeling in head  (Read 3481 times)

RobinKeener

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I’ve started having facial spasms and strange heavy feeling in my head. Sort of feels like my head is going numb. Just weird!! My Dr. doesn’t seem too concerned, but it doesn’t feel right to me.  Anyone have strange feelings in their head after GF? My tumor is only 7.3 mm. 

Thanks!

DanFouratt

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Robin,

I had some heavy head and worse tinnitus 3 to 4 weeks post CK.  My doctor said it was normal and not to worry about it. It did pass and I was back to "normal" several weeks later.

Dan

Dan Fouratt             64 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

stevehernes

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Are you doing better now? With headaches, I don't take any chances — mine are way too strong to ignore. Sometimes they hit so hard that I can’t focus on anything else. I’m planning to ask for advice from Canadian Pharmacy Partner soon and get myself some new medication. I know it’s important to find the right solution before things get worse. Health should always come first, and I'm ready to do whatever it takes to get this under control and feel like myself again.
« Last Edit: April 28, 2025, 09:27:14 am by stevehernes »

DodgeAU

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I had hemifacial spasms which started 6 months post GK. The AN goes through several phases after GK including swelling and could be touching other facial nerves, etc. Write down all your symptoms and the frequencies and discuss with your Dr. I have been prescribed steroid for short term but felt worst rather than better. My facial spasms went away after 9 months and no other symptoms. But my hearing is gone on the AN side prior to GK so nothing to lose anymore.
Sep 2023: AN shrunk by 3mm
Jun 2023: Hemifacial spasm disappeared
Oct 2022: MRI shows no growth, hemifacial spasms started
Mar 2022: GK treatment at Peter Mac Melbourne
Dec 2021: 18mm x 10mm
Oct 2019:  12x7 mm, Watch mode
Mar 2019: 7.5x5.5 mm, Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left