Author Topic: Fascial numbness and twitching off and on on wait and watch  (Read 876 times)

Majeed

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Fascial numbness and twitching off and on on wait and watch
« on: March 06, 2025, 11:49:41 pm »
I was diagnosed with AN in jan this year 1.3 *1.1 cm
I have occasional tinnitus no hairing loss at all but now i have twitching on AN side and numbness on cheeks i am worried now what to do continue with wait and watch or proceed to radiation treatment (can not do surgery since NS are not as much exp withis tumour in my country)my NS appointment is not until next month. Those who had similar symptoms on wait and watch did you choose treatment or continue to wait ?

donjehle

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Re: Fascial numbness and twitching off and on on wait and watch
« Reply #1 on: March 15, 2025, 05:20:29 pm »
Hi Majeed,

If I were you, I would want to consult with my specialist and share what you are experiencing.  He or she would be much more qualified to give you counsel than we would be.  People on the forums have experience with acoustic neuromas, but their situation could be different from your specific case.

I wish you the best on your journey!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.