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Author Topic: Second surgery-HELP  (Read 6297 times)

nattyc21

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Second surgery-HELP
« on: October 30, 2025, 09:51:13 AM »
I had a translab surgery in October of 2023(3cm tumor).  Then I went through Gamma Knife in April 2024 for the residual tumor.  The tumor is starting to grow and it is causing symptoms (currently it is 1.2x1.1x1.2).  I have have been told to do a second surgery.  I am curious about those of you that had a second surgery.  What was the recovery like? easier? harder? They are debating between a repeat translab vs a retrosigmoid/parial craniotomy.  Any advice would be great! Thanks everyone! Keep fighting!
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DanFouratt

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Re: Second surgery-HELP
« Reply #1 on: October 30, 2025, 03:28:35 PM »
Sorry to hear your story and I cannot offer advice but you are in my thoughts are prayer.  Good luck on your journey.
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Dan Fouratt             64 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm

mwatto

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Re: Second surgery-HELP
« Reply #2 on: October 31, 2025, 08:08:14 PM »
I read this today and was wondering if medication/ chemo might help this time? Here is the link to show your specialists : https://academic.oup.com/noa/article/6/1/vdae107/7697688
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible, stable.
MRI 2021, 2022 - stable no change
MRI 2023 Further reduction 12x12x10mm!! Hearing 87%
MRI 2024, 2025: No change in AN size or hearing status.

punch71

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Re: Second surgery-HELP
« Reply #3 on: December 06, 2025, 05:04:03 AM »
Good morning!  I also had tumor growth after Gamma Knife and a failed first attempt.  I went to Vanderbilt because they are one the highest volume centers, and operate on redos.  The only concern they had was the Facial Nerve is tissue thin after GK, and doesn't regenerate to full thickness.  There was a chance I would need a donor nerve to fix the FN, but thankfully I didn't. 

To answer your question, the recovery from the actual surgery was easier (Trans lab vs. Middle Fossa).  I did have to spend week at an in-patient rehab center was the main difference.  With that said, the long GK, many cranial nerves are effected. I still don't drive after a year and I get brain fatigue easier than I used too.  However, the bright side is I am alive and the tumor is gone.  It really puts life in perspective!  I hope this helps!
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