Author Topic: Gamma knife -8years later  (Read 12307 times)

suz

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Gamma knife -8years later
« on: April 01, 2026, 09:17:36 AM »
Hello AN community,
I am reposting this under a different topic due to minimal responses under “Hearing Issues”.
It has been quite awhile since I have visited this site. Mostly because everything with my AN has been stable. I had surgery at House in 2010 and gamma knife for regrowth in 2018. My hearing in theAN ear has been relatively stable in the severe hearing loss category. Now, 8 years after gamma knife it is in the “profound” hearing loss category. I could not make out ANY of the words in the word recognition part of the test! And my lived experience is that it is much harder to keep up with conversations and hear the tv, etc.
Due to job changes and insurance changes, the neurotologist that I now see does not have experience with gamma knife. He attributes the hearing loss to a delayed effect from gamma knife however it has been 8 years and this seems unusual. He did order an MRI which I appreciate. However I am curious if anyone else has had hearing loss so far removed from treatment?
Looking forward to hopefully finding others with similar experiences?
Gratefully,
Suz
Tumor 1.8cms x 1.5 cms x .5 cm;partially removed 7/14/10 by Drs. Friedman & Schwartz of House Ear Clinic in LA. Moderate SS hearing loss.
Re-growth approximate 3 mm per year; GK planned for 12/2017.
Philadelphia, PA area

DanFouratt

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Re: Gamma knife -8years later
« Reply #1 on: April 08, 2026, 02:37:06 PM »
Suz,

When I first started on my journey it was said radiation did not hurt hearing, however over time that has changed and it can be delayed. Here s a recent presentation on the subject:

 Radiation Treatment for Acoustic Neuroma - DH VSG        5/1/2025

Good Luck,
Dan
Dan Fouratt             65 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23            
MRI 6/14/24            7mm x 12 mm