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Author Topic: I'm back!  (Read 3693 times)

Joef

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I'm back!
« on: March 26, 2007, 11:25:53 am »
I'm back from my checkup/MRI at House Ear Clinic ...

the results are in .. my MRI was free of any AN  ;D and I do have a brain !  8)  ;D

He (Dr. Brachmann) was dead set against the 12/7 graft .. said my nerve was intact and progressing ... I wont come back 100%, but give it 3 years ... (ugggg) ...electric stimulation or exercises wont help ... just time.  He did strongly recommend a gold eye weight .. so any good doctors for this in the NYC,CT or Boston area? and the next MRI in 4 years...
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

nancyann

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Re: I'm back!
« Reply #1 on: March 26, 2007, 11:43:51 am »
Hi Joe:   YEEEAAHHH!!!!!   Wonderful news on the facial nerve coming back.
             So, YOUR doc said give the nerve 3 years, my neurologist said up to 2 years,
            hhmmmmmm.... are these guys ever in agreement...  I geuss Dr. Brachmann has seen
            improvement thru 3 years....
            My docs also said no electric stimulation/exercises UNTIL movement comes back
           (so, they agree on that !). 
            The eye weight really helps with appearance & protecting the cornea (but I'm sure you
            know that already..).   The surgery isn't a big deal;   as you know, my gold weight had to
            be removed, now I'm waiting for the lid to heal & the doc will see how I do once he puts in
            the platinum weight.
            Again, Joe,  glad to hear the GREAT NEWS!!!  All the best, Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Brendalu

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Re: I'm back!
« Reply #2 on: March 26, 2007, 01:26:43 pm »
Great news! Joe!  Anytime I hear no MRI's for a while I'm all for it!
BrendaO
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

msuscottie

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Re: I'm back!
« Reply #3 on: March 26, 2007, 01:39:12 pm »
Congrats on the great news Joe!
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TP

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Re: I'm back!
« Reply #4 on: March 26, 2007, 07:13:08 pm »
Hi Joe, great news on your recovery. Gold weight implant is very simple. I was somewhat awake for the surgery and didn't feel a thing. Took about 30 minutes for the whole procedure. I used my opthalmologist and he had no problem doing the surgery. He is recommending me see another surgeon to correct my double vision. That type of surgery is a bit more complicated.   
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4+cmm left retromastoid of cerebellopontine angle tumor removed 6/5/06; Dr. Eric Gabriel, St. Vincents, Jacksonville, FL
Left ear hearing loss, left eye gold weight, facial paralysis; 48 year old female. Dr. Khuddas - my hero - corrected my double vision

1wareagle

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Re: I'm back!
« Reply #5 on: March 26, 2007, 07:54:42 pm »
Joe,

Congrats on your clean MRI! I was hoping that he told you of some exercises that would help! I also asked Dr. Brackmann about exercises and he told me to wait till I seen movement first. I know it's still too early but I haven't had any movements yet!

While I was in LA, Dr. Roberts put my weight in. I was awake for the entire surgery. The best part is I rarely use eye drops anymore. I still have to use the clear patch to work outside but that OK.

Good Luck on your continued recovery,
Ellis
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Ellis- Age 50- Mississippi
3.2 cm AN Translab w/ BAHA Surgery
@ House Ear Clinic - LA - 01/04/07    Dr. Brackmann, Dr. Hilselberger, Dr. Stefan
Platinum weight in right eye-Dr. Roberts
Right side facial paralysis (slowly getting movements)

pearchica

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Re: I'm back!
« Reply #6 on: March 26, 2007, 07:55:36 pm »
YEAH YEAH YEAH... and when are you going fishing???  ;)  Annie
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Annie MMM MY Shwannoma (sung to the son My Sharona by the Knack-1979)
I have a TUMAH (Arnold Schwarzenegger accent) 2.4 x 2.2 x 1.9CM. CK Treatment 2/7-2/9/07, Stanford- Dr. Stephen Chang, Dr. Scott Soltys

Sue

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Re: I'm back!
« Reply #7 on: March 27, 2007, 12:52:53 am »
Congrats Joe on your clean bill of health.  Cheers!

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
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cookiesecond

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Re: I'm back!
« Reply #8 on: March 27, 2007, 02:47:29 am »
Thank you for sharing your GREAT news Joe. We praise the Lord with you!!!!
Have a blessed week all,
Lynn
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Obita

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Re: I'm back!
« Reply #9 on: March 27, 2007, 08:11:38 pm »
Welcome back you tumorless global moderator!!  Yeah!! 



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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Larry

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Re: I'm back!
« Reply #10 on: March 27, 2007, 08:51:02 pm »
WOO HOO

Needed to hear some good news Joe,


Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
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MLB57

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Re: I'm back!
« Reply #11 on: March 27, 2007, 08:58:27 pm »
Hi Joe--WONDERFUL news all around!!  Looking forward to seeing you again at our Maxwwell's brunch!!!!

Regards, Mary
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1 cm rt AN (retrosigmoid Jan 2001 UMASSMed Ctr/Worc, MA)
Residual left--continued growing--finished 30 FSR w/Dr Loeffler (Mass Gen/Boston MA) on Oct 22 2007... --April 2010--tumor shrank to 8mm and is a dark spot!!  Latest Update: April May 2017 scan shows no change!--Next MRI 2020!!  Life is good!!
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