A place to vent

[TP]

I went from seeing a pain Dr to neurosurgeon and scheduling my AN to be removed in a matter of a few weeks. I was blessed, I really liked my Dr's but what I don't think they are trained to do very well is treat the side affects/disabilities that come with a brain tumor. Once my tumor was removed it was up to me to speak up about what was bothering me. I thought I was going to have double vision for ever and finally the eye Dr said, eventually we can correct this but that was about it. Also, they never mentioned to me that exercise would help me get better, I did that on my own and my recovery improved dramatically.

Bottom line, this website is awesome. I hope there are Dr's who read this and learn from all the information that is shared and provided. 

[ppearl214]

I need to vent, dang it! 

*tries to think of things to note for proper venting... um.... husband finally arrived from the UK... won the long battle with US Immigration..... dog and spouse finally enjoying Father/daughter time..... balance in checkbook could be better but still able to pay bills.... car is working ok... spouse landed job in 1-1/2 wks post-arrival to the states... um...head booger is dying.... Chiari 1 stable.... hearing stable... had great "Best Coast" brunch this past weekend..... oy....um... crap*

Nothing to vent for today... carry on!

Phyl

[Brendalu]

Phyl,

I like your "vent".  I'm glad things are going so well for you, Beanie and Ian.
Huggles,
Brendalu

[Dealy]

This is not really a vent-but for me a manner of coping with all my frustrations especially the lack of hearing. I have turned to reading alot now because of the hearing issue. Probably better anyway because I was a TV Couch Potato before. I just finished a book called The Hiding Place by Coorie Ten Boom. She was a Dutch woman who hid people with her family during WW2 and was caught and sent to a concentration camp where eventually her sister Betsie died.She talks alot about forgiveness and dealing with hurt. I must admit some days I am full of bitterness that this happened in my stage ofl life when everything was going so well. How we take life and it's consequences for granted.I was so impressed with her outlook on life and the entire Ten Boom family regardless of what was dealt too them-good or bad. I would highly reccomend this book to any one on this forum who enjoys reading and even if you don"t-hey-you might begin to look at things different. I know it made me appreciate what I do have-even if I ending up gping totally deaf. So this is not really a vent-just putting things into perspective. Excellent Book-Read It. Thanks Ron.P.S. I will not spoil the plot of the book any further by revealing the contents. I guarantee-anyone who desires too read this book will not put it down.

[Captain Deb]

Anyone who thinks these ANs benign,
Has gotta be outta their mind!
Your doc says "Be glad it's not cancer,
but for you, well, I just got no answer!"

I like the idea of a reverse AN conference--where we sit up there on the dais like the gods and goddesses we are and answer their questions!

Actually the ANA will be posting an online survey about "life after AN treatment" on the website in an attempt to gather information on quality of life issues and do some actual published research on the subject, not much of whci has been done in the US.

Brendalu--I did my time in the pokey for 4 days in May of 71 in DC along with 18,000 other "kids". Capt Deb in the brig for something other than drunk and disorderly. Imagine!

Be Well and Sail On,

Capt Deb

[Brendalu]

Ahhhhhhhhhh, Capt Deb we have a lot more than AN's and headaches in common.
A reverse AN conference sounds like the real meal deal!  I am anxious to see the survey!
Brendalu

[Captain Deb]

I'm surre we'll all get a head's (in your case a redhead's up) up when the PTB (powers that be) finally post it on the website. 

Capt Deb

[nancyann]

Dealy:  thanks for the book suggestion.  I love reading & am always looking for books.  I recently started one - but when I get to the bookstore I'll pick up The Hiding Place.   Nancy

[Captain Deb]

Nancyann--If you want to have a real laugh--pick up ANYTHING by Carl Hiiasen. Tourist Season is good as is Stormy Weather and Skinny Dip.  He writes about Florida and it's history and wacky inhabitants. I had a laughing fit on the plane once.

Capt Deb

[nancyann]

Hey Capt:  I read them - they were hysterical, especially Stormy Weather !!!  My mom read me Skinny Dip while I was recuperating immediately post op & couldn't read too well.     I love the way he pokes fun at the politics in Florida too - unfortunately he's 'right on' - alot of it IS based on reality. (Lord,I miss New York...)

[Captain Deb]

Your MOM read you Hiiasen? Too funny. He is the world's best cusser! Creative cussing is my favorite.  I love Jon Stewart and the Daily Show on Comedy Central.

Capt Deb

[Static]

Maybe I should look for those books too.  I do alot of reading while waiting at doctor appts.  Jon Stewart and Stephen Colbert are two of my favorite shows.  Comedy central is my fav channel.  Its my default on the remote  .

~Karen

[Betsy]

Hiaasen is a hoot!  I bought a "grab bag" of recorded books on e-bay awhile back and Skinny Dip was the best of the bunch.  As it turns out, recorded books are just the thing for those dizzy-days when I can't seem to focus on the printed word.  Some authors "read" better than others, and so far everything by Hiaasen has been a delight to listen to!

[Gennysmom]

Oh, audiobooks are the best these days!!!!!  It's how I get through work when the ambient noise is too much to take.   I'll admit I'm a huge geek and have all the Harry Potter ones on audiobooks, and they help me keep my sanity!!!!  Very relaxing!

[nancyann]

I took my mom to see the movie 'Sideways' - the guy gulping down the spitoon full of 'used wine' didn't bother her, what DID bother her was  during the last sex scene she turns to me & says, "Do they HAVE to show CHUBBY people having sex?"  (mom is 81, 5'1" & 105 lbs of energy!).  I almost had an accident laughing so hard !! (so Hiassen is mild stuff for her!)