I didn't write that very well...my brain and fingers don't always work together to
type things straight... a little clarification
My surgeon has been working with ANs for 25 years so has many surgeries under his belt and
a great record...I have checked him out over last 26 months
![Smiley :)](https://www.anausa.org/smf/Smileys/classic/smiley.gif)
... we kick car tires and I have no
problem kicking doctors so to speak... the first neuro surgeon I was sent in to wanted to go in
immediately and take it out ...and gave that as an only option...he had only been certified for
about 3 years
The tumor was 3 mm when found but is now( i will lose you here
![Smiley :)](https://www.anausa.org/smf/Smileys/classic/smiley.gif)
) if you had a pear in front
of you small end up...the tumor measures 3.2cm from top to bottom 2.25cm across narrow end and 3.3cm
at widest point across bottom of pear... and completely filling boney channel and bulging against brain...
until it grew just watching was safer than removing...I had super messed up hormone problems that kept
me bleeding 17-20 days of the month and the AN took off growing we delayed that surgery until I was
losing more blood than my body could replace... they think the hormonal surges
may have played a part in the tumor growing so fast after just sitting there barely changing for so long
My neuro surgeon sent me to the radio surgeon for another option other than open surgery...
it is the radio surgeon , who after making the comments that lupus patients didn't alway do
well and mentioned
stickiness that called me back and suggested doing smaller doses
over longer period... the stickiness comment is totally unmedical and I have looked and found
nothing relating to ANs in lupus patients....the single high dose does seem like it would be less
likely to cause a flare...
My neuro surgeon sent me to radio surgeon to try to avoid open surgery because of the lupus..
but the growth spurt has forced me into a place where something has to be done soon
Thanks for the website ... I will check it out and see what I can find out
Sorry for descriptive instead of medical terms... I have memory problems due to lupus brain fog
and the big words escape me even when I know what I want to say... but the pear shape
I can remember...go figure