When I asked how many AN's my surgeon's group "saw" a year, I was told 30-40. I don't know if all were treated surgically, but the fact that they have so many instances of a rare condition come through the door means that they know something of the "nature of the beast" and are probably getting referrals from area medical professionals based on a good reputation.
I found that I gained the most comfort from contacting those who had been treated by the surgical team I was considering. I asked a lot of questions about how they chose this particular team and learned a lot about their reputation in this way. Every case is different, but it is nice to hear directly about a surgical team's outcomes so you can assess their track record independently.
I am sure by now you have seen the many glowing posts about the House group. They must be amazing, and probably see more AN's than anyone else in the country, but there are good results here in Texas, too. I count myself among that group of individuals.
All the best as you go through this process - making the treatment decision is the most difficult part by far.
Regards,
Sanddollar
