Author Topic: No clue what to do now  (Read 2421 times)

susier

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No clue what to do now
« on: July 24, 2007, 08:05:27 pm »
I was diagnosed by me ENT last week and referred to another ENT in Houston that has experience with this surgery.  I don't know the exact size, only that it is small.  I live in a suburb of Houston (South) and hate driving into the "Big City".  I have been reading the postings for several days and I haven't seen any from the Houston area.  Does anyone know of good Neurosugeons and Radiation treatment facilities in the Houston area, preferably south?

Yvette

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Re: No clue what to do now
« Reply #1 on: July 24, 2007, 09:47:12 pm »
Hi Susier, I'm up north so can't recomend anyone. I hope you've read enough here in AN land, to make very sure the doctor you pick has done at least 400-500 of your kind of procedure. Anything less than that and they are still practicing. Risks and complications are scary things, so pick someone for whom this is old hat. Keep us informed how you're doing! Yvette
3cm translab Jan. 2007 performed at Mayo Clinic MN. by Drs. Link and Driscoll. SSD but doing great!

sgerrard

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Re: No clue what to do now
« Reply #2 on: July 25, 2007, 12:40:33 am »
I like to Google, so here are some links.

First is Dr. Vrabec, a name I have seen on this forum, he is at Baylor Medical College. I'm not sure if he is a neurosurgeon, though.
http://www.bcm.edu/oto/faculty/jtv.htm

There is a Gamma Knife center in Houston:
http://www.westhoustongamma.com/

If you can make it to San Antonio or Austin, there are CyberKnife centers there. This link is to the CK location page:
http://www.accuray.com/SiteLocations/index.aspx

The second doctor at this link, Dr. Medbery in Oklahoma, has an email address where you can contact him about CyberKnife:
http://www.cyberknifesupport.org/about_the_doctors.html

By the sound of it, you can consider radiation treatment as well as surgery. It is less demanding to go through. And for that matter, you may be able to watch and wait for a while. The first thing is to get someone knowledgable to have a look at the MRI and tell you what is going on.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

susier

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Re: No clue what to do now
« Reply #3 on: July 25, 2007, 01:05:08 pm »
Thanks for the well wishes and the info.  I guess I will know more next week after my consultation with the ENT.  Anyone ever heard of Dr. Walter McReynolds?  I believe he is with Memorial Hermann Hospital in Houston.  Again, thanks for you're replies.

Battyp

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Re: No clue what to do now
« Reply #4 on: July 25, 2007, 08:43:22 pm »
Susier,
 email Boppie she's from that area...

Boppie

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Re: No clue what to do now
« Reply #5 on: July 25, 2007, 11:21:06 pm »
Boppie here.  I go for my second annual MRI in mid October.  My stats are still below. Doing well, here.  I know about ANers in Houston and another person here in Victoria besides myself.  Both had Translab. 

I saw you in that photo, Batty! 

Obita

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Re: No clue what to do now
« Reply #6 on: July 26, 2007, 07:14:19 am »
Hi susier:

It is nice to have you on!

Sorry about your diagnosis but I am glad you found us. 

Sorry, I can't help with drs in your area but I wanted to say hi and good luck finding the right
doctor for the job. 

Keep us posted!!

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines