Author Topic: New diagnosis and scared silly ....  (Read 8689 times)

Juliette

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Re: New diagnosis and scared silly ....
« Reply #15 on: August 04, 2007, 09:35:55 am »
Hi Denise,

Am also a fellow Canadian but i live rouyn-noranda Quebec. I went true something familiar whit my diagnose. It's true we have to wait and wait again for the treament since every thing work whit waiting listes . Am also new at this I was diagnose in late march 2007 and was treated for a mouth swelling and a imaganary condition befor they belive me an finaly went for the MRI test. My An is 3.2 cm by 3 cm and am 27 years old. I will be operated as soon as a room is available(the waiting lists problem again).

I was lucky to have a good family doctor that even if he didn't know much about AN he took good care of me untile I saw a specialiste in Montreal. Did you know that you can ask the archive of your hospital to have access to all of your dossier and all the MRI prints when ever you want, they belong to you.

It's great that you found this forum. It's help me cope with the idea of having this AN. I learned that it's take some time an ajusting.
But everything is possible whit positive thinking.
Take care and keep in touch ;)
Julie
31 years old
3,2cm x 3 cm AN diagnose in march 2007
translab surgery on 0ctober 17, 2008 in CHUM à montreal
with BAHA

yardtick

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Re: New diagnosis and scared silly ....
« Reply #16 on: August 19, 2007, 10:20:12 am »
4cm in Pacific Northwest,

I do not know how I missed your post.  Actually I do, I was on my way to New York City for the long weekend.  I found your post to be very informative.  I live  1hr away from Toronto.  It is comforting to know that here in Canada we do have outstanding facilities.  You are correct about "working the system".  I've been waiting since July 10th to have a MRI.  The Dr office faxed the request thru July 19.  I needed to get a copy of the previous MRIs for 2nd & 3rd opinions.  I called the hospital on July 28 for the CD and inquired when my next MRI appointment was.  I was told to call back the following week.  I forgot and called on Aug 13th.  The appointment was set for Nov 19th.  I was upset and told the lady it isn't her fault but I'm suppose to have a MRI every 6 months. I explained my ENT washed his hands of me and referred me to a neurosurgeon, who got me confused with another patient.  I am going to see another specialist in Toronto and I need the MRI as soon as possible.  She asked me to hold, and she came back on the line and asked if I could be there for Fri Aug 17th @ 7:10 am.  I told her I'd be there with bells on.  I thanked her profusely.  My husband works @ a different hospital.  If I wasn't able to the MRI at the hospital were I had the previous two, my husband was going to use "his connections". 

This whole AN journey is frightening.  I'm still not as calm as a lot of the other people who are on the same journey.  The headaches, the metallic taste in my mouth, the numbness and the fatigue at times are very distressing.  The support I have received from this place is amazing.  Canadians, Americans and those who post from all over the world a comfort blanket for me.  I can't seem to know enough about AN.  I'm amazed at the knowledge on this forum. 

Thak you to all,
Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games